# 117-hr-9676: RARE Act of 2022

117-hr-9676, RARE Act of 2022, is a 117th Congress bill sponsored by Rep. Carson, André [D-IN-7] (D-IN); status Referred to the House Committee on Energy and Commerce. (as of 2025-11-18).

- Canonical: https://policyrisk.com/legislation/117-hr-9676
- As of: 2025-11-18
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: 117-hr-9676
- Congress: 117
- Title: RARE Act of 2022
- Status: Referred to the House Committee on Energy and Commerce.
- Introduced: 2022-12-22
- Sponsor: Rep. Carson, André [D-IN-7] (D-IN)
- Cosponsors: 0
- Policy area: Health
- Touches household money: no
- Last recorded action: 2025-11-18

## Summary

Rare disease Advancement, surveillance Research, and Education Act of 2022 or the RARE Act of 2022 The bill reauthorizes through FY2028 the National Institutes of Health Rare Disease Regional Centers of Excellence and expands activities to facilitate research and increase awareness of rare diseases and conditions. (Rare diseases and conditions are those with a prevalence of fewer than 200,000 individuals in the United States.) The Centers for Disease Control and Prevention may expand infrastructure and activities to track the epidemiology of up to four rare diseases and conditions and incorporate this information into a National Rare Disease or Condition Surveillance System. The Agency for Healthcare Research and Quality must expand its activities to increase health care providers' awareness of rare diseases and conditions. The National Academies of Sciences, Engineering, and Medicine, or another appropriate entity, must update the 2010 report Rare Diseases and Orphan Products: Accelerating Research and Development.

## Related bills

- 117-hr-4693: Global Malnutrition Prevention and Treatment Act of 2021
- 117-hr-1667: Dr. Lorna Breen Health Care Provider Protection Act
- 117-hr-3537: Accelerating Access to Critical Therapies for ALS Act
- 117-hr-3525: Commission To Study the Potential Creation of a National Museum of Asian Pacific American History and Culture Act
- 117-hr-7791: Access to Baby Formula Act of 2022
- 117-hr-7077: Empowering the U.S. Fire Administration Act

## Sources
- [117-hr-9676 on Congress.gov](https://www.congress.gov/bill/117th-congress/house-bill/9676)

## Related
- [117-hr-4693: Global Malnutrition Prevention and Treatment Act of 2021](https://policyrisk.com/legislation/117-hr-4693)
- [117-hr-1667: Dr. Lorna Breen Health Care Provider Protection Act](https://policyrisk.com/legislation/117-hr-1667)
- [117-hr-3537: Accelerating Access to Critical Therapies for ALS Act](https://policyrisk.com/legislation/117-hr-3537)
- [117-hr-3525: Commission To Study the Potential Creation of a National Museum of Asian Pacifi…](https://policyrisk.com/legislation/117-hr-3525)
- [117-hr-7791: Access to Baby Formula Act of 2022](https://policyrisk.com/legislation/117-hr-7791)
- [117-hr-7077: Empowering the U.S. Fire Administration Act](https://policyrisk.com/legislation/117-hr-7077)
- [All bills in Congress](https://policyrisk.com/legislation)

Source: PRIA, https://policyrisk.com/legislation/117-hr-9676 (as of 2025-11-18).