# 119-hr-1518: New Era of Preventing End-Stage Kidney Disease Act

119-hr-1518, New Era of Preventing End-Stage Kidney Disease Act, is a 119th Congress bill sponsored by Rep. Bilirakis, Gus M. [R-FL-12] (R-FL); status introduced; PRIA reads it as touching household money (as of 2026-10-17).

- Canonical: https://policyrisk.com/legislation/119-hr-1518
- As of: 2026-10-17
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: 119-hr-1518
- Congress: 119
- Title: New Era of Preventing End-Stage Kidney Disease Act
- Status: introduced
- Introduced: 2025-02-24
- Sponsor: Rep. Bilirakis, Gus M. [R-FL-12] (R-FL)
- Cosponsors: 64
- Policy area: Health
- Touches household money: yes
- Last recorded action: 2026-10-17

## Summary

**Preventing end-stage kidney disease** by creating NIDDK Centers of Excellence that fund research, expand provider and public education, and reach rural and underserved communities to better diagnose and treat rare kidney diseases. - Researchers and clinicians: Establishes NIDDK Centers of Excellence on Rare Kidney Disease Research and funds grants and cooperative agreements to study causes, symptoms, diagnosis, progression, and treatments, including genotype‑phenotype relationships. It bars use of QALYs, DALYs, or similar measures that discriminate against people with disabilities in value assessments. - Patients and families: Permits centers to cover patient care costs needed for research and to provide education on diagnosis, routine urinalysis, genetic testing, renal diet, and mental and emotional health resources. The bill emphasizes outreach and information programs for rural and underserved communities and people diagnosed with rare kidney diseases. - Health systems and federal coordination: Supports clinical training, continuing education, and demonstration projects for diagnostic, prevention, control, and treatment methods and requires coordination with other NIH institutes and the FDA. Each center may receive up to 5 years of support with possible 5‑year extensions under peer review, and the bill authorizes $6 million per year for FY2026–2030 to carry out these activities. *If enacted, this bill would authorize $6 million per year for FY2026–2030, increasing federal spending by about $30 million over that five-year period.*

## Cosponsors (64)

- Rep. Moore, Gwen [D-WI-4] (D-WI), 2026-10-05T00:00:00.000Z
- Rep. Pingree, Chellie [D-ME-1] (D-ME), 2026-10-09T00:00:00.000Z
- Rep. Sewell, Terri A. [D-AL-7] (D-AL), 2025-02-24T00:00:00.000Z
- Rep. Miller, Carol D. [R-WV-1] (R-WV), 2025-02-24T00:00:00.000Z
- Rep. Peters, Scott H. [D-CA-50] (D-CA), 2025-02-24T00:00:00.000Z
- Rep. Balderson, Troy [R-OH-12] (R-OH), 2025-02-24T00:00:00.000Z
- Rep. Tonko, Paul [D-NY-20] (D-NY), 2025-02-24T00:00:00.000Z
- Rep. Schneider, Bradley Scott [D-IL-10] (D-IL), 2025-02-24T00:00:00.000Z
- Rep. Davis, Danny K. [D-IL-7] (D-IL), 2025-02-24T00:00:00.000Z
- Rep. Lieu, Ted [D-CA-36] (D-CA), 2025-03-03T00:00:00.000Z
- Rep. Dunn, Neal P. [R-FL-2] (R-FL), 2025-03-10T00:00:00.000Z
- Rep. Fitzpatrick, Brian K. [R-PA-1] (R-PA), 2025-03-11T00:00:00.000Z
- Rep. Crenshaw, Dan [R-TX-2] (R-TX), 2025-03-14T00:00:00.000Z
- Del. Norton, Eleanor Holmes [D-DC-At Large] (D-DC), 2025-05-07T00:00:00.000Z
- Rep. Suozzi, Thomas R. [D-NY-3] (D-NY), 2025-05-14T00:00:00.000Z
- Rep. Brownley, Julia [D-CA-26] (D-CA), 2025-05-19T00:00:00.000Z
- Rep. Obernolte, Jay [R-CA-23] (R-CA), 2025-05-19T00:00:00.000Z
- Rep. Lawler, Michael [R-NY-17] (R-NY), 2025-05-19T00:00:00.000Z
- Rep. Castor, Kathy [D-FL-14] (D-FL), 2025-06-03T00:00:00.000Z
- Rep. Davis, Donald G. [D-NC-1] (D-NC), 2025-06-06T00:00:00.000Z
- Rep. Wilson, Joe [R-SC-2] (R-SC), 2025-06-23T00:00:00.000Z
- Rep. Tlaib, Rashida [D-MI-12] (D-MI), 2025-06-30T00:00:00.000Z
- Rep. Johnson, Henry C. "Hank" [D-GA-4] (D-GA), 2025-07-23T00:00:00.000Z
- Rep. Ryan, Patrick [D-NY-18] (D-NY), 2025-07-23T00:00:00.000Z
- Rep. Nadler, Jerrold [D-NY-12] (D-NY), 2025-07-25T00:00:00.000Z
- Rep. Garbarino, Andrew R. [R-NY-2] (R-NY), 2025-07-25T00:00:00.000Z
- Rep. Bishop, Sanford D. [D-GA-2] (D-GA), 2025-07-25T00:00:00.000Z
- Rep. Correa, J. Luis [D-CA-46] (D-CA), 2025-07-29T00:00:00.000Z
- Rep. McGovern, James P. [D-MA-2] (D-MA), 2025-07-29T00:00:00.000Z
- Rep. Jackson, Jonathan L. [D-IL-1] (D-IL), 2025-08-01T00:00:00.000Z
- Rep. Crow, Jason [D-CO-6] (D-CO), 2025-08-05T00:00:00.000Z
- Rep. Soto, Darren [D-FL-9] (D-FL), 2025-08-12T00:00:00.000Z
- Rep. Lofgren, Zoe [D-CA-18] (D-CA), 2025-08-12T00:00:00.000Z
- Rep. Green, Al [D-TX-9] (D-TX), 2025-08-12T00:00:00.000Z
- Rep. Ross, Deborah K. [D-NC-2] (D-NC), 2025-08-12T00:00:00.000Z
- Rep. Menendez, Robert [D-NJ-8] (D-NJ), 2025-08-19T00:00:00.000Z
- Rep. McBride, Sarah [D-DE-At Large] (D-DE), 2025-08-26T00:00:00.000Z
- Rep. Kim, Young [R-CA-40] (R-CA), 2025-09-03T00:00:00.000Z
- Rep. Ocasio-Cortez, Alexandria [D-NY-14] (D-NY), 2025-09-03T00:00:00.000Z
- Rep. Vindman, Eugene Simon [D-VA-7] (D-VA), 2025-09-03T00:00:00.000Z
- Rep. Van Drew, Jefferson [R-NJ-2] (R-NJ), 2025-09-30T00:00:00.000Z
- Rep. Ivey, Glenn [D-MD-4] (D-MD), 2025-09-30T00:00:00.000Z
- Rep. Smith, Christopher H. [R-NJ-4] (R-NJ), 2026-10-15T00:00:00.000Z
- Rep. Stevens, Haley M. [D-MI-11] (D-MI), 2025-10-21T00:00:00.000Z
- Rep. Carey, Mike [R-OH-15] (R-OH), 2025-10-21T00:00:00.000Z
- Rep. Flood, Mike [R-NE-1] (R-NE), 2025-11-04T00:00:00.000Z
- Rep. Cuellar, Henry [D-TX-28] (D-TX), 2025-11-04T00:00:00.000Z
- Rep. Vasquez, Gabe [D-NM-2] (D-NM), 2025-12-17T00:00:00.000Z
- Rep. Kiggans, Jennifer A. [R-VA-2] (R-VA), 2026-02-26T00:00:00.000Z
- Rep. Lee, Susie [D-NV-3] (D-NV), 2026-02-26T00:00:00.000Z
- Rep. Levin, Mike [D-CA-49] (D-CA), 2026-04-06T00:00:00.000Z
- Rep. Thompson, Bennie G. [D-MS-2] (D-MS), 2026-04-06T00:00:00.000Z
- Rep. Chu, Judy [D-CA-28] (D-CA), 2026-04-06T00:00:00.000Z
- Rep. Clarke, Yvette D. [D-NY-9] (D-NY), 2026-04-06T00:00:00.000Z
- Rep. Escobar, Veronica [D-TX-16] (D-TX), 2026-04-06T00:00:00.000Z
- Rep. Pocan, Mark [D-WI-2] (D-WI), 2026-04-06T00:00:00.000Z
- Rep. Bynum, Janelle S. [D-OR-5] (D-OR), 2026-04-06T00:00:00.000Z
- Rep. Thompson, Mike [D-CA-4] (D-CA), 2026-04-20T00:00:00.000Z
- Rep. Walkinshaw, James R. [D-VA-11] (D-VA), 2026-04-22T00:00:00.000Z
- Rep. Bergman, Jack [R-MI-1] (R-MI), 2026-07-27T00:00:00.000Z
- Rep. Hamadeh, Abraham J. [R-AZ-8] (R-AZ), 2026-07-27T00:00:00.000Z
- Rep. Keating, William R. [D-MA-9] (D-MA), 2026-08-13T00:00:00.000Z
- Rep. Bacon, Don [R-NE-2] (R-NE), 2026-08-20T00:00:00.000Z
- Rep. Fleischmann, Charles J. "Chuck" [R-TN-3] (R-TN), 2026-08-20T00:00:00.000Z

## Provisions PRIA read

- Medicare tests to delay dialysis: benefit, medium. If enacted, HHS would run Medicare experiments to test treatments for rare kidney disease. The focus would be on options that delay or avoid dialysis or transplant. HHS would also study how to raise public awareness of rare kidney disease. A report to Congress would be due within 24 months of enact…
- New centers for rare kidney disease: benefit, low. If enacted, NIH could fund regional Centers of Excellence for rare kidney disease. Centers could cover patient care needed for research and provide training and outreach, including urinalysis and genetic testing. Outreach would target rural and underserved communities and include renal diet and fam…
- National study on kidney testing: benefit, low. If enacted, HHS would study testing, prevention, precision medicine, and care for rare kidney disease. The study would review urinalysis, biopsies, genetic tests like APOL1, insurance and counseling access, and treatment patterns across Medicare, Medicaid, and private plans. HHS would consult with…
- More kidney training for doctors: benefit, low. If enacted, grants could fund nephrology fellowships, including stipends for postgraduate trainees. Training would focus on preventing, diagnosing, and treating rare kidney disease, including APOL1 risks, and improving care for affected communities. The bill would also add kidney disease to require…

## Related bills

- 119-hr-842: Nancy Gardner Sewell Medicare Multi-Cancer Early Detection Screening Coverage Act
- 119-hr-2102: Major Richard Star Act
- 119-hr-1262: Mikaela Naylon Give Kids a Chance Act
- 119-hr-3514: Improving Seniors’ Timely Access to Care Act of 2025
- 119-hr-1993: 25th Anniversary of 9/11 Commemorative Coin Act
- 119-hr-2048: Metastatic Breast Cancer Access to Care Act

## Sources
- [119-hr-1518 on Congress.gov](https://www.congress.gov/bill/119th-congress/house-bill/1518)

## Related
- [119-hr-842: Nancy Gardner Sewell Medicare Multi-Cancer Early Detection Screening Coverage A…](https://policyrisk.com/legislation/119-hr-842)
- [119-hr-2102: Major Richard Star Act](https://policyrisk.com/legislation/119-hr-2102)
- [119-hr-1262: Mikaela Naylon Give Kids a Chance Act](https://policyrisk.com/legislation/119-hr-1262)
- [119-hr-3514: Improving Seniors’ Timely Access to Care Act of 2025](https://policyrisk.com/legislation/119-hr-3514)
- [119-hr-1993: 25th Anniversary of 9/11 Commemorative Coin Act](https://policyrisk.com/legislation/119-hr-1993)
- [119-hr-2048: Metastatic Breast Cancer Access to Care Act](https://policyrisk.com/legislation/119-hr-2048)
- [All bills in Congress](https://policyrisk.com/legislation)

Source: PRIA, https://policyrisk.com/legislation/119-hr-1518 (as of 2026-10-17).