# 119-hr-5178: Sickle Cell Disease Comprehensive Care Act

119-hr-5178, Sickle Cell Disease Comprehensive Care Act, is a 119th Congress bill sponsored by Rep. Dunn, Neal P. [R-FL-2] (R-FL); status introduced; PRIA reads it as touching household money (as of 2026-11-03).

- Canonical: https://policyrisk.com/legislation/119-hr-5178
- As of: 2026-11-03
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: 119-hr-5178
- Congress: 119
- Title: Sickle Cell Disease Comprehensive Care Act
- Status: introduced
- Introduced: 2025-09-08
- Sponsor: Rep. Dunn, Neal P. [R-FL-2] (R-FL)
- Cosponsors: 37
- Policy area: Health
- Touches household money: yes
- Last recorded action: 2026-11-03

## Summary

**This bill would expand Medicaid health homes to explicitly cover individuals with sickle cell disease.** It would require dental and vision care for those enrollees, set reporting rules for states, and direct CMS to publish best practices for SCD-focused care. - People with sickle cell disease and their families: Would let eligible Medicaid enrollees access sickle cell disease-focused health home services beginning January 1, 2026. Enrollees in those health homes must receive dental and vision services while enrolled. - State Medicaid programs: Creates a specific pathway for states to submit a sickle cell disease-focused State plan amendment with distinct requirements and timelines. States with an approved amendment must submit a report by the last day of the eighth fiscal quarter the amendment is in effect on quality measures, access to care, and total health care expenditures. - Providers and federal guidance: Requires the Secretary to publish best practices on the CMS website by June 30, 2026, drawing on clinical society guidelines and input from SCD providers and patient advocacy groups.

## Cosponsors (37)

- Rep. DeSaulnier, Mark [D-CA-10] (D-CA), 2026-11-02T00:00:00.000Z
- Rep. Davis, Danny K. [D-IL-7] (D-IL), 2025-09-08T00:00:00.000Z
- Rep. Carter, Earl L. "Buddy" [R-GA-1] (R-GA), 2025-09-08T00:00:00.000Z
- Rep. Figures, Shomari [D-AL-2] (D-AL), 2025-09-08T00:00:00.000Z
- Rep. Bilirakis, Gus M. [R-FL-12] (R-FL), 2025-09-08T00:00:00.000Z
- Rep. Johnson, Julie [D-TX-32] (D-TX), 2025-09-08T00:00:00.000Z
- Del. Norton, Eleanor Holmes [D-DC-At Large] (D-DC), 2025-09-08T00:00:00.000Z
- Rep. McIver, LaMonica [D-NJ-10] (D-NJ), 2025-09-08T00:00:00.000Z
- Rep. Fields, Cleo [D-LA-6] (D-LA), 2025-09-08T00:00:00.000Z
- Rep. Green, Al [D-TX-9] (D-TX), 2025-09-08T00:00:00.000Z
- Rep. Gottheimer, Josh [D-NJ-5] (D-NJ), 2025-09-08T00:00:00.000Z
- Rep. Tlaib, Rashida [D-MI-12] (D-MI), 2025-09-08T00:00:00.000Z
- Rep. Johnson, Henry C. "Hank" [D-GA-4] (D-GA), 2025-09-08T00:00:00.000Z
- Rep. Jackson, Jonathan L. [D-IL-1] (D-IL), 2025-09-08T00:00:00.000Z
- Rep. Davis, Donald G. [D-NC-1] (D-NC), 2025-09-08T00:00:00.000Z
- Rep. Soto, Darren [D-FL-9] (D-FL), 2025-09-08T00:00:00.000Z
- Rep. Budzinski, Nikki [D-IL-13] (D-IL), 2025-09-08T00:00:00.000Z
- Rep. Sewell, Terri A. [D-AL-7] (D-AL), 2025-09-08T00:00:00.000Z
- Rep. Thompson, Bennie G. [D-MS-2] (D-MS), 2025-09-08T00:00:00.000Z
- Rep. Moulton, Seth [D-MA-6] (D-MA), 2025-09-08T00:00:00.000Z
- Rep. Carson, André [D-IN-7] (D-IN), 2025-09-09T00:00:00.000Z
- Rep. Thanedar, Shri [D-MI-13] (D-MI), 2025-09-30T00:00:00.000Z
- Rep. Ivey, Glenn [D-MD-4] (D-MD), 2025-09-30T00:00:00.000Z
- Rep. McBride, Sarah [D-DE-At Large] (D-DE), 2025-09-30T00:00:00.000Z
- Rep. Vindman, Eugene Simon [D-VA-7] (D-VA), 2025-10-08T00:00:00.000Z
- Rep. Friedman, Laura [D-CA-30] (D-CA), 2025-12-03T00:00:00.000Z
- Rep. Jayapal, Pramila [D-WA-7] (D-WA), 2026-03-03T00:00:00.000Z
- Rep. Wilson, Joe [R-SC-2] (R-SC), 2026-03-18T00:00:00.000Z
- Del. Plaskett, Stacey E. [D-VI-At Large] (D-VI), 2026-04-14T00:00:00.000Z
- Rep. Moore, Gwen [D-WI-4] (D-WI), 2026-04-14T00:00:00.000Z
- Rep. DelBene, Suzan K. [D-WA-1] (D-WA), 2026-04-22T00:00:00.000Z
- Rep. Aguilar, Pete [D-CA-33] (D-CA), 2026-06-08T00:00:00.000Z
- Rep. Conaway, Herbert C. [D-NJ-3] (D-NJ), 2026-06-08T00:00:00.000Z
- Rep. Adams, Alma S. [D-NC-12] (D-NC), 2026-06-23T00:00:00.000Z
- Rep. Carbajal, Salud O. [D-CA-24] (D-CA), 2026-06-29T00:00:00.000Z
- Rep. Foushee, Valerie P. [D-NC-4] (D-NC), 2026-09-02T00:00:00.000Z
- Rep. Carter, Troy A. [D-LA-2] (D-LA), 2026-09-14T00:00:00.000Z

## Provisions PRIA read

- Sickle cell Medicaid health homes with dental and vision: benefit, medium. Starting January 1, 2026, states could create Medicaid health homes focused on sickle cell disease. The HHS Secretary would have to approve each state plan, so programs are not guaranteed. If a state runs one approved on or after that date, it would have to include dental and vision for people with…

## Related bills

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- 119-hres-1641: Honoring the contributions of Indian Americans and supporting the designation of July as "Indian American Heritage Month".
- 119-hr-842: Nancy Gardner Sewell Medicare Multi-Cancer Early Detection Screening Coverage Act
- 119-hr-909: Crime Victims Fund Stabilization Act of 2025
- 119-hr-7973: Momnibus Act
- 119-hr-3514: Improving Seniors’ Timely Access to Care Act of 2025

## Sources
- [119-hr-5178 on Congress.gov](https://www.congress.gov/bill/119th-congress/house-bill/5178)

## Related
- [119-hr-2102: Major Richard Star Act](https://policyrisk.com/legislation/119-hr-2102)
- [119-hres-1641: Honoring the contributions of Indian Americans and supporting the designation o…](https://policyrisk.com/legislation/119-hres-1641)
- [119-hr-842: Nancy Gardner Sewell Medicare Multi-Cancer Early Detection Screening Coverage A…](https://policyrisk.com/legislation/119-hr-842)
- [119-hr-909: Crime Victims Fund Stabilization Act of 2025](https://policyrisk.com/legislation/119-hr-909)
- [119-hr-7973: Momnibus Act](https://policyrisk.com/legislation/119-hr-7973)
- [119-hr-3514: Improving Seniors’ Timely Access to Care Act of 2025](https://policyrisk.com/legislation/119-hr-3514)
- [All bills in Congress](https://policyrisk.com/legislation)

Source: PRIA, https://policyrisk.com/legislation/119-hr-5178 (as of 2026-11-03).