# 119-hres-1290: Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.

119-hres-1290, Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes., is a 119th Congress bill sponsored by Rep. Tonko, Paul [D-NY-20] (D-NY); status introduced (as of 2026-09-21).

- Canonical: https://policyrisk.com/legislation/119-hres-1290
- As of: 2026-09-21
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: 119-hres-1290
- Congress: 119
- Title: Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.
- Status: introduced
- Introduced: 2026-05-14
- Sponsor: Rep. Tonko, Paul [D-NY-20] (D-NY)
- Cosponsors: 1
- Policy area: Health
- Touches household money: no
- Last recorded action: 2026-09-21

## Summary

**This resolution would declare behavioral health an essential component of comprehensive rare disease care.** It would push agencies and stakeholders to expand access, strengthen the workforce, support peer programs, and address insurer barriers for roughly 25 to 30 million Americans, more than half of whom are children. - Families and patients: Would promote integrating behavioral health into clinical pathways and research so anxiety, depression, and trauma-related symptoms are treated alongside medical care. - Caregivers: Encourages standardized, evidence-informed peer support programs, including virtual and community models, to help reduce caregiver burnout. - Clinicians and the workforce: Urges investment in behavioral health staffing, especially child and adolescent providers, and calls for cultural competency training. - Insurers and payors: Recommends that public and private payors review and address reimbursement barriers that limit access to integrated behavioral health services. - Federal coordination: Calls on the Department of Health and Human Services, the National Institutes of Health, and the Centers for Medicare & Medicaid Services to prioritize behavioral health in rare disease initiatives and work with patient groups and researchers.

## Cosponsors (1)

- Rep. Bacon, Don [R-NE-2] (R-NE), 2026-05-14T00:00:00.000Z

## Related bills

- 119-hr-9237: Take Care of America’s Veterans Act
- 119-hr-3077: Agriculture Resilience Act of 2025
- 119-hr-7977: Energy Bills Relief Act
- 119-hr-3151: SHIPS for America Act of 2025
- 119-hr-7973: Momnibus Act
- 119-hr-2086: Rights for the TSA Workforce Act

## Sources
- [119-hres-1290 on Congress.gov](https://www.congress.gov/bill/119th-congress/house-resolution/1290)

## Related
- [119-hr-9237: Take Care of America’s Veterans Act](https://policyrisk.com/legislation/119-hr-9237)
- [119-hr-3077: Agriculture Resilience Act of 2025](https://policyrisk.com/legislation/119-hr-3077)
- [119-hr-7977: Energy Bills Relief Act](https://policyrisk.com/legislation/119-hr-7977)
- [119-hr-3151: SHIPS for America Act of 2025](https://policyrisk.com/legislation/119-hr-3151)
- [119-hr-7973: Momnibus Act](https://policyrisk.com/legislation/119-hr-7973)
- [119-hr-2086: Rights for the TSA Workforce Act](https://policyrisk.com/legislation/119-hr-2086)
- [All bills in Congress](https://policyrisk.com/legislation)

Source: PRIA, https://policyrisk.com/legislation/119-hres-1290 (as of 2026-09-21).