# 119-s-5488: Sickle Cell Disease Treatment Centers Act of 2026

119-s-5488, Sickle Cell Disease Treatment Centers Act of 2026, is a 119th Congress bill sponsored by Sen. Van Hollen, Chris [D-MD] (D-MD); status introduced; PRIA reads it as touching household money (as of 2026-10-16).

- Canonical: https://policyrisk.com/legislation/119-s-5488
- As of: 2026-10-16
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: 119-s-5488
- Congress: 119
- Title: Sickle Cell Disease Treatment Centers Act of 2026
- Status: introduced
- Introduced: 2026-09-23
- Sponsor: Sen. Van Hollen, Chris [D-MD] (D-MD)
- Cosponsors: 2
- Policy area: Health
- Touches household money: yes
- Last recorded action: 2026-10-16

## Summary

**This bill would create a federal grant program to expand access to comprehensive Sickle Cell Disease care through regional hub-and-spoke Treatment Centers.** It would also establish a National Sickle Cell Disease Coordinating Center and a CDC SCD Data Collection Program to track outcomes and reduce disparities. - Families and patients: Would fund coordinated care that covers telehealth, genetic counseling, home-based care, pediatric-to-adult transition programs, and help with insurance, cost-sharing, and travel costs for in-person visits. - Providers, community groups, and local clinics: Would require hub-and-spoke networks that include at least one medical hub and one spoke, integrate community health workers on spokes, and fund provider and school staff education and quality improvement. - National coordination and data: Would create a National Sickle Cell Disease Coordinating Center to support grantees and public education and a CDC SCD Data Collection Program to monitor prevalence, treatments, and disparities; the bill would require a Request for Information within 180 days and a report to Congress within 3 years.

## Cosponsors (2)

- Sen. Booker, Cory A. [D-NJ] (D-NJ), 2026-09-23T00:00:00.000Z
- Sen. Klobuchar, Amy [D-MN] (D-MN), 2026-09-23T00:00:00.000Z

## Provisions PRIA read

- New sickle cell treatment grants: benefit, medium. If enacted, HHS would award grants to create Sickle Cell Disease Treatment Centers organized as hub-and-spoke networks. Applicants would need a medical hub, at least one spoke, and at least one community nonprofit. Grants would fund coordinated lifelong care, smoother pediatric-to-adult transitions…
- National coordinating and data programs: benefit, medium. If enacted, HHS would establish a National Sickle Cell Disease Coordinating Center to advise the agency, harmonize grantee activities, offer technical help, and run a rotating stakeholder advisory panel. The CDC would run a Sickle Cell Disease Data Collection Program in coordination with the Center…
- Program funding and allocation rules: benefit, medium. If enacted, the bill would authorize such sums as may be necessary to fund the program starting in fiscal year 2027. Of any money Congress provides each year, 70% would go to hub-and-spoke network activities, 20% to community-based organizations, 5% to a National Coordinating Center, and 5% to the…
- Reporting and stakeholder input rules: benefit, low. If enacted, HHS would publish a request for information within 180 days after enactment and before each grant cycle to get stakeholder input. The Secretary would also report to Congress no later than 3 years after enactment and every 5 years after that on grantees, activities funded, numbers and de…
- New rules for spoke providers: cost, low. If enacted, the bill would define a 'spoke' as a provider that must have at least one collaborative agreement with a medical hub and a community nonprofit. Each spoke would have to include a community health worker on the care team. The bill would also require grant-funded activities to supplement,…

## Related bills

- 119-s-5066: Health Equity and Accountability Act of 2026
- 119-s-5283: Momnibus Act
- 119-s-4504: Full-Service Community School Expansion Act of 2026
- 119-s-3990: PrEP Access and Coverage Act of 2026
- 119-s-2823: FAMILY Act
- 119-s-2763: Keep Billionaires Out of Social Security Act

## Sources
- [119-s-5488 on Congress.gov](https://www.congress.gov/bill/119th-congress/senate-bill/5488)

## Related
- [119-s-5066: Health Equity and Accountability Act of 2026](https://policyrisk.com/legislation/119-s-5066)
- [119-s-5283: Momnibus Act](https://policyrisk.com/legislation/119-s-5283)
- [119-s-4504: Full-Service Community School Expansion Act of 2026](https://policyrisk.com/legislation/119-s-4504)
- [119-s-3990: PrEP Access and Coverage Act of 2026](https://policyrisk.com/legislation/119-s-3990)
- [119-s-2823: FAMILY Act](https://policyrisk.com/legislation/119-s-2823)
- [119-s-2763: Keep Billionaires Out of Social Security Act](https://policyrisk.com/legislation/119-s-2763)
- [All bills in Congress](https://policyrisk.com/legislation)

Source: PRIA, https://policyrisk.com/legislation/119-s-5488 (as of 2026-10-16).