# Illinois HB5465: DPH-NEURO DISEASE PROGRESS ACT Illinois HB5465, DPH-NEURO DISEASE PROGRESS ACT, is a 104th General Assembly (2025–2026) House bill sponsored by Kam Buckner (Democratic); status in committee, last action 2026-04-06 (Added Co-Sponsor Rep. Kimberly Du Buclet) (as of 2026-11-01). - Canonical: https://policyrisk.com/state-bill/IL-HB5465-2025-2026 - As of: 2026-11-01 - Plain-text twin of the page above; the HTML and this file carry the same facts. ## Facts - Bill: Illinois HB5465 - State: Illinois - Session: 104th General Assembly (2025–2026) - Title: DPH-NEURO DISEASE PROGRESS ACT - Status: in committee - Chamber: House - Introduced: 2026-02-06 - Last action: 2026-04-06, Added Co-Sponsor Rep. Kimberly Du Buclet - Sponsor: Kam Buckner (Democratic) - Cosponsors: 8 - Subjects: appropriations-health and human services - Touches household money: no - Economic provisions PRIA read: 0 ## Summary Creates the Neurodegenerative Disease Patient Protection and Progress Act. Requires the Department of Public Health to convene a Neurodegenerative Disease Advisory Council within the Department. Sets forth provisions concerning the membership of the Advisory Council, terms of the members, meetings of the Advisory Council, and administrative support, and duties of the Advisory Council Provides that the Director of Public Health shall designate or hire a full-time Neurodegenerative Disease Coordinator within the Department to implement and administer the Act. Requires the Coordinator, acting through and under the supervision of the Director, and with input from the Advisory Council, to develop and publish a State plan to address neurodegenerative diseases. Sets forth required components of the Plan. Establishes a voluntary statewide clinical and population registry to collect de-identified information and, with the patient's informed consent, limited identifying information, to (i) improve understanding of burden imposed by neurodegenerative diseases, natural history, and outcomes, (ii) facilitate public health planning and service delivery, and (iii) support research consistent with applicable privacy protections. Establishes the Neurodegenerative Disease Research Support And Grant Fund to make grants to public or private not-for-profit entities for the purpose of conducting neurodegenerative disease research. Sets forth provisions concerning equity and rural access; coordination with federal programs, academic centers, and private partners; reporting; limitations; and rulemaking. Amends the State Finance Act to make a conforming change. Effective immediately. ## Bill overview No economic impacts identified for this bill. ## Sponsors and cosponsors - Sponsor: Kam Buckner (Democratic), House - Cosponsor: Amy Briel (Democratic), House - Cosponsor: Ann M. Williams (Democratic), House - Cosponsor: Barbara Hernandez (Democratic), House - Cosponsor: Kimberly Du Buclet (Democratic), House - Cosponsor: Michael Crawford (Democratic), House - Cosponsor: Nabeela Syed (Democratic), House - Cosponsor: Theresa Mah (Democratic), House - Cosponsor: Yolonda Morris (Democratic), House ## Actions (17) - 2026-04-06: Added Co-Sponsor Rep. Kimberly Du Buclet (House) - 2026-04-06: Added Co-Sponsor Rep. Ann M. Williams (House) - 2026-04-06: Added Co-Sponsor Rep. Amy Briel (House) - 2026-04-06: Added Co-Sponsor Rep. Theresa Mah (House) - 2026-03-27: House Committee Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee (House) - 2026-03-27: Rule 19(a) / Re-referred to Rules Committee (House) - 2026-03-25: Added Co-Sponsor Rep. Barbara Hernandez (House) - 2026-03-20: House Committee Amendment No. 1 Rules Refers to Appropriations-Health and Human Services Committee (House) - 2026-03-20: Added Co-Sponsor Rep. Yolonda Morris (House) - 2026-03-19: Added Co-Sponsor Rep. Nabeela Syed (House) - 2026-03-19: House Committee Amendment No. 1 Referred to Rules Committee (House) - 2026-03-19: House Committee Amendment No. 1 Filed with Clerk by Rep. Kam Buckner (House) - 2026-03-12: Added Co-Sponsor Rep. Michael Crawford (House) - 2026-03-04: Assigned to Appropriations-Health and Human Services Committee (House) - 2026-02-13: Referred to Rules Committee (House) - 2026-02-13: First Reading (House) - 2026-02-06: Filed with the Clerk by Rep. Kam Buckner (House) ## Bill text - House Amendment 1: [PDF](https://www.ilga.gov/documents/legislation/104/HB/PDF/10400HB5465ham001.pdf) - Introduced: [PDF](https://www.ilga.gov/documents/legislation/104/HB/PDF/10400HB5465.pdf) ## Related bills - HB5198: AFFORDABLE HOUSING-CILAS (passed house) - SB1937: PENSION CODE-VARIOUS (passed senate) - HB2563: CONDO-RESERVE STUDY (in committee) - HB4701: LIMITATIONS FACILITY FEES ACT (in committee) - SB3008: DHS-ABLE PROGRAM INFO MATERIAL (passed senate) - SB3484: VEH CD-PLATES-REGISTRATION (signed) ## Sources - [House Amendment 1 (PDF)](https://www.ilga.gov/documents/legislation/104/HB/PDF/10400HB5465ham001.pdf) - [Introduced (PDF)](https://www.ilga.gov/documents/legislation/104/HB/PDF/10400HB5465.pdf) ## Related - [HB5198: AFFORDABLE HOUSING-CILAS](https://policyrisk.com/state-bill/IL-HB5198-2025-2026) - [SB1937: PENSION CODE-VARIOUS](https://policyrisk.com/state-bill/IL-SB1937-2025-2026) - [HB2563: CONDO-RESERVE STUDY](https://policyrisk.com/state-bill/IL-HB2563-2025-2026) - [HB4701: LIMITATIONS FACILITY FEES ACT](https://policyrisk.com/state-bill/IL-HB4701-2025-2026) - [SB3008: DHS-ABLE PROGRAM INFO MATERIAL](https://policyrisk.com/state-bill/IL-SB3008-2025-2026) - [SB3484: VEH CD-PLATES-REGISTRATION](https://policyrisk.com/state-bill/IL-SB3484-2025-2026) - [Illinois bills](https://policyrisk.com/states/illinois/bills) - [Illinois state hub](https://policyrisk.com/states/illinois) - [All state legislation](https://policyrisk.com/state-bills) Source: PRIA, https://policyrisk.com/state-bill/IL-HB5465-2025-2026 (as of 2026-11-01).