# Illinois HR0382: BATTEN DISEASE AWARENESS DAY

Illinois HR0382, BATTEN DISEASE AWARENESS DAY, is a 104th General Assembly (2025–2026) House bill sponsored by Janet Yang Rohr (Democratic); status in committee, last action 2025-05-27 (Referred to Rules Committee) (as of 2026-11-01).

- Canonical: https://policyrisk.com/state-bill/IL-HR0382-2025-2026
- As of: 2026-11-01
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: Illinois HR0382
- State: Illinois
- Session: 104th General Assembly (2025–2026)
- Title: BATTEN DISEASE AWARENESS DAY
- Status: in committee
- Chamber: House
- Introduced: 2025-05-23
- Last action: 2025-05-27, Referred to Rules Committee
- Sponsor: Janet Yang Rohr (Democratic)
- Cosponsors: 0
- Touches household money: no
- Economic provisions PRIA read: 0

## Summary

Declares June 9, 2025 as Batten Disease Awareness Day in the State of Illinois in order to recognize and bring awareness to the rare disease population, including those living with Batten disease in Illinois, and to recognize the heroic and tireless efforts of Dr. Elizabeth Berry-Kravis and her esteemed colleagues at Rush University Medical Center as they attempt to save children afflicted with Batten disease by searching for treatments and a cure. Commends Charlie Sims for advancing the scientific development of treatments for Batten disease for children everywhere, his family and friends for valiantly facing the difficulties of Batten disease, and the ongoing efforts of Team Charlie in their continued work of finding hope, giving love, and being good.

## Bill overview

No economic impacts identified for this bill.

## Sponsors and cosponsors

- Sponsor: Janet Yang Rohr (Democratic), House

## Actions (2)

- 2025-05-27: Referred to Rules Committee (House)
- 2025-05-23: Filed with the Clerk by Rep. Janet Yang Rohr (House)

## Bill text

- Introduced: [PDF](https://www.ilga.gov/documents/legislation/104/HR/PDF/10400HR0382.pdf)

## Related bills

- HB5198: AFFORDABLE HOUSING-CILAS (passed house)
- SB1937: PENSION CODE-VARIOUS (passed senate)
- HB2563: CONDO-RESERVE STUDY (in committee)
- HB4701: LIMITATIONS FACILITY FEES ACT (in committee)
- SB3008: DHS-ABLE PROGRAM INFO MATERIAL (passed senate)
- SB3484: VEH CD-PLATES-REGISTRATION (signed)

## Sources
- [Introduced (PDF)](https://www.ilga.gov/documents/legislation/104/HR/PDF/10400HR0382.pdf)

## Related
- [HB5198: AFFORDABLE HOUSING-CILAS](https://policyrisk.com/state-bill/IL-HB5198-2025-2026)
- [SB1937: PENSION CODE-VARIOUS](https://policyrisk.com/state-bill/IL-SB1937-2025-2026)
- [HB2563: CONDO-RESERVE STUDY](https://policyrisk.com/state-bill/IL-HB2563-2025-2026)
- [HB4701: LIMITATIONS FACILITY FEES ACT](https://policyrisk.com/state-bill/IL-HB4701-2025-2026)
- [SB3008: DHS-ABLE PROGRAM INFO MATERIAL](https://policyrisk.com/state-bill/IL-SB3008-2025-2026)
- [SB3484: VEH CD-PLATES-REGISTRATION](https://policyrisk.com/state-bill/IL-SB3484-2025-2026)
- [Illinois bills](https://policyrisk.com/states/illinois/bills)
- [Illinois state hub](https://policyrisk.com/states/illinois)
- [All state legislation](https://policyrisk.com/state-bills)

Source: PRIA, https://policyrisk.com/state-bill/IL-HR0382-2025-2026 (as of 2026-11-01).