# Illinois SR0145: RARE DISEASE DAY

Illinois SR0145, RARE DISEASE DAY, is a 104th General Assembly (2025–2026) Senate bill sponsored by Adriane L. Johnson (Democratic); status in committee, last action 2025-03-04 (Referred to Assignments) (as of 2026-11-01).

- Canonical: https://policyrisk.com/state-bill/IL-SR0145-2025-2026
- As of: 2026-11-01
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: Illinois SR0145
- State: Illinois
- Session: 104th General Assembly (2025–2026)
- Title: RARE DISEASE DAY
- Status: in committee
- Chamber: Senate
- Introduced: 2025-03-04
- Last action: 2025-03-04, Referred to Assignments
- Sponsor: Adriane L. Johnson (Democratic)
- Cosponsors: 0
- Subjects: assignments
- Touches household money: no
- Economic provisions PRIA read: 0

## Summary

Declares March 5, 2025 as Rare Disease Day in the State of Illinois in order to raise awareness of rare diseases, support individuals and families who struggle with rare diseases, bring attention to the need for research and funding to support the discovery and development of therapies designed to treat and potentially cure rare diseases, and support the continued work of the Illinois Rare Disease Commission.

## Bill overview

No economic impacts identified for this bill.

## Sponsors and cosponsors

- Sponsor: Adriane L. Johnson (Democratic), Senate

## Actions (2)

- 2025-03-04: Referred to Assignments (Senate)
- 2025-03-04: Filed with Secretary (Senate)

## Bill text

- Introduced: [PDF](https://www.ilga.gov/documents/legislation/104/SR/PDF/10400SR0145.pdf)

## Related bills

- HB5198: AFFORDABLE HOUSING-CILAS (passed house)
- SB1937: PENSION CODE-VARIOUS (passed senate)
- HB2563: CONDO-RESERVE STUDY (in committee)
- HB4701: LIMITATIONS FACILITY FEES ACT (in committee)
- SB3008: DHS-ABLE PROGRAM INFO MATERIAL (passed senate)
- SB3484: VEH CD-PLATES-REGISTRATION (signed)

## Sources
- [Introduced (PDF)](https://www.ilga.gov/documents/legislation/104/SR/PDF/10400SR0145.pdf)

## Related
- [HB5198: AFFORDABLE HOUSING-CILAS](https://policyrisk.com/state-bill/IL-HB5198-2025-2026)
- [SB1937: PENSION CODE-VARIOUS](https://policyrisk.com/state-bill/IL-SB1937-2025-2026)
- [HB2563: CONDO-RESERVE STUDY](https://policyrisk.com/state-bill/IL-HB2563-2025-2026)
- [HB4701: LIMITATIONS FACILITY FEES ACT](https://policyrisk.com/state-bill/IL-HB4701-2025-2026)
- [SB3008: DHS-ABLE PROGRAM INFO MATERIAL](https://policyrisk.com/state-bill/IL-SB3008-2025-2026)
- [SB3484: VEH CD-PLATES-REGISTRATION](https://policyrisk.com/state-bill/IL-SB3484-2025-2026)
- [Illinois bills](https://policyrisk.com/states/illinois/bills)
- [Illinois state hub](https://policyrisk.com/states/illinois)
- [All state legislation](https://policyrisk.com/state-bills)

Source: PRIA, https://policyrisk.com/state-bill/IL-SR0145-2025-2026 (as of 2026-11-01).