# North Carolina HB 1166: AN ACT REVISING THE COMPOSITION AND DUTIES OF THE ADVISORY COUNCIL ON RARE DISEASES; TRANSFERRING THE COUNCIL TO THE DEPARTMENT OF HEALTH AND HUMAN SERVICES; AND APPROPRIATING FUNDS TO THE DEPARTMENT OF HEALTH AND HUMAN SERVICES TO COVER THE OPERATING EXPENSES OF THE COUNCIL.

North Carolina HB 1166, AN ACT REVISING THE COMPOSITION AND DUTIES OF THE ADVISORY COUNCIL ON RARE DISEASES; TRANSFERRING THE COUNCIL TO THE DEPARTMENT OF HEALTH AND HUMAN SERVICES; AND APPROPRIATING FUNDS TO THE DEPARTMENT OF HEALTH AND HUMAN SERVICES TO COVER THE OPERATING EXPENSES OF THE COUNCIL., is a 2025-2026 Session House bill sponsored by Mary Belk (Democratic), Becky Carney (Democratic), Donny Lambeth (Republican) and 1 others; status in committee, last action 2026-05-12 (Re-ref Com On Appropriations) (as of 2026-11-01).

- Canonical: https://policyrisk.com/state-bill/NC-HB1166-2025
- As of: 2026-11-01
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: North Carolina HB 1166
- State: North Carolina
- Session: 2025-2026 Session
- Title: AN ACT REVISING THE COMPOSITION AND DUTIES OF THE ADVISORY COUNCIL ON RARE DISEASES; TRANSFERRING THE COUNCIL TO THE DEPARTMENT OF HEALTH AND HUMAN SERVICES; AND APPROPRIATING FUNDS TO THE DEPARTMENT OF HEALTH AND HUMAN SERVICES TO COVER THE OPERATING EXPENSES OF THE COUNCIL.
- Status: in committee
- Chamber: House
- Introduced: 2026-04-30
- Last action: 2026-05-12, Re-ref Com On Appropriations
- Sponsors: Mary Belk (Democratic), Becky Carney (Democratic), Donny Lambeth (Republican), Renée A. Price (Democratic)
- Cosponsors: 15
- Subjects: APPROPRIATIONS, BUDGETING, COUNCILS, DHHS, DISEASES & HEALTH DISORDERS, HEALTH SERVICES, MEMBERSHIP, PUBLIC, PUBLIC HEALTH, UNC, NAMED LAWS, RARE DISEASE ADVISORY COUNCIL, SCHOOL OF MEDICINE
- Touches household money: no
- Economic provisions PRIA read: 0

## Summary

No summary available.

## Bill overview

No economic impacts identified for this bill.

## Sponsors and cosponsors

- Sponsor: Mary Belk (Democratic), House
- Sponsor: Becky Carney (Democratic), House
- Sponsor: Donny Lambeth (Republican), House
- Sponsor: Renée A. Price (Democratic), House
- Cosponsor: Cynthia Ball (Democratic), House
- Cosponsor: Deb Butler (Democratic), House
- Cosponsor: Maria Cervania (Democratic), House
- Cosponsor: Bryan Cohn (Democratic), House
- Cosponsor: Mike Colvin (Democratic), House
- Cosponsor: Amanda P. Cook (Democratic), House
- Cosponsor: Carla D. Cunningham (Independent), House
- Cosponsor: Gloristine Brown (Democratic), House
- Cosponsor: Garland E. Pierce (Democratic), House
- Cosponsor: Julia Greenfield (Democratic), House
- Cosponsor: Pricey Harrison (Democratic), House
- Cosponsor: Kanika Brown (Democratic), House
- Cosponsor: Carolyn G. Logan (Democratic), House
- Cosponsor: Rodney D. Pierce (Democratic), House
- Cosponsor: Stephen M. Ross (Republican), House

## Actions (5)

- 2026-05-12: Re-ref Com On Appropriations (House)
- 2026-05-12: Reptd Fav (House)
- 2026-05-04: Ref to the Com on Health, if favorable, Appropriations, if favorable, Rules, Calendar, and Operations of the House (House)
- 2026-05-04: Passed 1st Reading (House)
- 2026-04-30: Filed (House)

## Bill text

- Filed: [PDF](https://www.ncleg.gov/Sessions/2025/Bills/House/PDF/H1166v0.pdf)
- Latest Edition: [PDF](https://www.ncleg.gov/Sessions/2025/Bills/House/PDF/H1166v1.pdf)

## Related bills

- HB 96: AN ACT TO CREATE AN ALTERNATIVE REMEDY FOR THE EXPEDITED REMOVAL OF UNAUTHORIZED PERSONS FROM PRIVATE PROPERTY BY A LAW ENFORCEMENT AGENCY. (vetoed)
- HB 958: AN ACT TO MAKE VARIOUS CHANGES TO ELECTION ADMINISTRATION LAWS AND CAMPAIGN FINANCE LAWS. (vetoed)
- HB 377: 2026 Court Changes. (vetoed)
- HB 268: 2026 Budget Technical Corrections - II. (signed)
- SB 445: Regulatory Reform Act of 2026. (signed)
- HB 832: Education Omnibus. (passed senate)

## Sources
- [Filed (PDF)](https://www.ncleg.gov/Sessions/2025/Bills/House/PDF/H1166v0.pdf)
- [Latest Edition (PDF)](https://www.ncleg.gov/Sessions/2025/Bills/House/PDF/H1166v1.pdf)

## Related
- [HB 96: AN ACT TO CREATE AN ALTERNATIVE REMEDY FOR THE EXPEDITED REMOVAL OF UNAUTHORIZE…](https://policyrisk.com/state-bill/NC-HB96-2025)
- [HB 958: AN ACT TO MAKE VARIOUS CHANGES TO ELECTION ADMINISTRATION LAWS AND CAMPAIGN FIN…](https://policyrisk.com/state-bill/NC-HB958-2025)
- [HB 377: 2026 Court Changes.](https://policyrisk.com/state-bill/NC-HB377-2025)
- [HB 268: 2026 Budget Technical Corrections - II.](https://policyrisk.com/state-bill/NC-HB268-2025)
- [SB 445: Regulatory Reform Act of 2026.](https://policyrisk.com/state-bill/NC-SB445-2025)
- [HB 832: Education Omnibus.](https://policyrisk.com/state-bill/NC-HB832-2025)
- [North Carolina bills](https://policyrisk.com/states/north-carolina/bills)
- [North Carolina state hub](https://policyrisk.com/states/north-carolina)
- [All state legislation](https://policyrisk.com/state-bills)

Source: PRIA, https://policyrisk.com/state-bill/NC-HB1166-2025 (as of 2026-11-01).