# New York A 7845: Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry

New York A 7845, Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry, is a 2025-2026 Regular Session House bill sponsored by Steve Stern (Democratic); status signed, last action 2025-10-17 (SIGNED CHAP.478) (as of 2026-10-19).

- Canonical: https://policyrisk.com/state-bill/NY-A7845-2025
- As of: 2026-10-19
- Plain-text twin of the page above; the HTML and this file carry the same facts.

## Facts
- Bill: New York A 7845
- State: New York
- Session: 2025-2026 Regular Session
- Title: Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry
- Status: signed
- Chamber: House
- Introduced: 2025-04-11
- Last action: 2025-10-17, SIGNED CHAP.478
- Sponsor: Steve Stern (Democratic)
- Cosponsors: 6
- Subjects: HEALTH, CODES, WAYS AND MEANS, RULES
- Touches household money: no
- Roll calls: 2 (197 yes, 0 no in all)
- Economic provisions PRIA read: 2

## Summary

No summary available.

## Bill overview: provisions PRIA read

- Registry notice and privacy rights for patients: benefit, low. Patients diagnosed with ALS or another motor neuron disease must receive written and spoken notice about registry data collection. After enough time to review it, patients can opt out in writing; only their disease-case incidence information remains required. The department must protect patient ide…
- New York tracks motor neuron disease cases: benefit, low. New York’s health department must create a research registry tracking new and existing cases of ALS and other motor neuron diseases. Doctors, nurse practitioners, physician assistants, and general hospitals must report cases within 180 days after patients come under their care. Patients have no rep…

## Sponsors and cosponsors

- Sponsor: Steve Stern (Democratic), House
- Cosponsor: Harvey Epstein (Democratic), House
- Cosponsor: MaryJane Shimsky (Democratic), House
- Cosponsor: Micah Lasher (Democratic), House
- Cosponsor: Nader Sayegh (Democratic), House
- Cosponsor: Rebecca Seawright (Democratic), House
- Cosponsor: Steven Otis (Democratic), House

## Roll call votes

| Date | Chamber | Motion | Result | Yes | No | Other |
| --- | --- | --- | --- | --- | --- | --- |
| 2025-06-10 | Senate | FLOOR Vote | pass | 58 | 0 |   |
| 2025-06-06 | House | Assembly floor vote | pass | 139 | 0 |   |

## Actions (16)

- 2025-10-17: SIGNED CHAP.478 (House)
- 2025-10-09: DELIVERED TO GOVERNOR (House)
- 2025-06-10: RETURNED TO ASSEMBLY (Senate)
- 2025-06-10: PASSED SENATE (Senate)
- 2025-06-10: 3RD READING CAL.1540 (Senate)
- 2025-06-10: SUBSTITUTED FOR S6413 (Senate)
- 2025-06-06: REFERRED TO RULES (Senate)
- 2025-06-06: DELIVERED TO SENATE (House)
- 2025-06-06: PASSED ASSEMBLY (House)
- 2025-06-06: ORDERED TO THIRD READING RULES CAL.455 (House)
- 2025-06-06: RULES REPORT CAL.455 (House)
- 2025-06-06: REPORTED (House)
- 2025-05-29: REPORTED REFERRED TO RULES (House)
- 2025-05-28: REPORTED REFERRED TO WAYS AND MEANS (House)
- 2025-05-19: REPORTED REFERRED TO CODES (House)
- 2025-04-11: REFERRED TO HEALTH (House)

## Bill text

- Original, 2025-04-11: [PDF](https://legislation.nysenate.gov/pdf/bills/2025/A7845)

## Related bills

- S 10643: Relates to labor peace agreements and the cannabis industry wage board; repealer (signed)
- S 9051: Prohibits artificial intelligence companions from using features which are considered unsafe for minors (signed)
- A 5175: Requires certain security features and warning labels on baby monitors (signed)
- A 11443: Relates to commercial food fish licenses (signed)
- A 10343: Relates to fees and expenses in unemployment insurance proceedings; extending effectiveness (signed)
- A 10052: Extends the effectiveness of the authority of the town of Red Hook to impose real estate transfer taxes and to deposit revenue from such taxes into a community… (signed)

## Sources
- [Original (PDF)](https://legislation.nysenate.gov/pdf/bills/2025/A7845)

## Related
- [S 10643: Relates to labor peace agreements and the cannabis industry wage board; repealer](https://policyrisk.com/state-bill/NY-S10643-2025)
- [S 9051: Prohibits artificial intelligence companions from using features which are cons…](https://policyrisk.com/state-bill/NY-S9051-2025)
- [A 5175: Requires certain security features and warning labels on baby monitors](https://policyrisk.com/state-bill/NY-A5175-2025)
- [A 11443: Relates to commercial food fish licenses](https://policyrisk.com/state-bill/NY-A11443-2025)
- [A 10343: Relates to fees and expenses in unemployment insurance proceedings; extending e…](https://policyrisk.com/state-bill/NY-A10343-2025)
- [A 10052: Extends the effectiveness of the authority of the town of Red Hook to impose re…](https://policyrisk.com/state-bill/NY-A10052-2025)
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Source: PRIA, https://policyrisk.com/state-bill/NY-A7845-2025 (as of 2026-10-19).