# Vermont H.46: An act relating to the Rare Disease Advisory Council Vermont H.46, An act relating to the Rare Disease Advisory Council, is a 2025-2026 Session House bill sponsored by Anne B. B Donahue (Independent); status signed, last action 2026-05-19 (House message: Governor approved bill on May 18, 2026); PRIA reads it as touching household money (as of 2026-11-01). - Canonical: https://policyrisk.com/state-bill/VT-H46-2026 - As of: 2026-11-01 - Plain-text twin of the page above; the HTML and this file carry the same facts. ## Facts - Bill: Vermont H.46 - State: Vermont - Session: 2025-2026 Session - Title: An act relating to the Rare Disease Advisory Council - Status: signed - Chamber: House - Introduced: 2025-01-21 - Last action: 2026-05-19, House message: Governor approved bill on May 18, 2026 - Sponsor: Anne B. B Donahue (Independent) - Cosponsors: 2 - Touches household money: yes - Economic provisions PRIA read: 1 ## Summary No summary available. ## Bill overview: provisions PRIA read - New council for Vermonters with rare diseases: benefit, low. Beginning July 1, 2026, the law creates a Rare Disease Advisory Council within Vermont's Department of Health. It advises the public, lawmakers, and state agencies about the needs of people with rare diseases. It gathers public input, identifies service gaps, and recommends better screening, diagno… ## Sponsors and cosponsors - Sponsor: Anne B. B Donahue (Independent), House - Cosponsor: Daniel A Noyes (Democratic), House - Cosponsor: Mary-Katherine A Stone (Democratic), House ## Actions (43) - 2026-05-19: House message: Governor approved bill on May 18, 2026 (House) - 2026-05-18: Signed by Governor on May 18, 2026 (House) - 2026-05-12: Delivered to Governor on May 12, 2026 (House) - 2026-05-08: House message: House concurred in Senate proposal of amendment (House) - 2026-05-06: Senate proposal of amendment concurred in (House) - 2026-05-06: Action Calendar: Senate Proposal of Amendment (House) - 2026-05-05: Notice Calendar: Senate Proposal of Amendment (House) - 2026-05-01: Senate Message: Passed in concurrence with proposal of amendment (Senate) - 2026-04-30: Read 3rd time & passed in concurrence with proposal of amendment (Senate) - 2026-04-30: New Business/Third Reading (Senate) - 2026-04-29: 3rd reading ordered (Senate) - 2026-04-29: Proposal of amendment by Committee on Health and Welfare agreed to (Senate) - 2026-04-29: Reported favorably by Senator Lyons for Committee on Appropriations (Senate) - 2026-04-29: Read 2nd time, reported favorably with proposal of amendment by Senator Morley for Committee on Health and Welfare (Senate) - 2026-04-29: Favorable report by Committee on Appropriations (Senate) - 2026-04-29: Favorable report with proposal of amendment by Committee on Health and Welfare (Senate) - 2026-04-29: Unfinished Business/Second Reading (Senate) - 2026-04-28: Favorable report by Committee on Appropriations (Senate) - 2026-04-28: Favorable report with proposal of amendment by Committee on Health and Welfare (Senate) - 2026-04-28: Second Reading (Senate) - 2026-04-24: Favorable report by Committee on Appropriations (Senate) - 2026-04-24: Favorable report with proposal of amendment by Committee on Health and Welfare (Senate) - 2026-04-24: Second Reading (Senate) - 2026-04-24: Entered on Notice Calendar (Senate) - 2026-04-22: Referred to Committee on Appropriations per Senate Rule 31 (Senate) - 2026-04-22: Favorable report with proposal of amendment by Committee on Health and Welfare (Senate) - 2026-04-22: Second Reading (Senate) - 2026-04-22: Entered on Notice Calendar (Senate) - 2026-01-06: Referred to Committee on Health and Welfare per Temporary Senate Rule 44A (Senate) - 2025-05-16: Read 1st time & referred to Committee on Rules (Senate) - 2025-05-14: Read third time and passed (House) - 2025-05-14: Action Calendar: Third Reading (House) - 2025-05-13: Third Reading ordered (House) - 2025-05-13: Report of Committee on Human Services agreed to (House) - 2025-05-13: Rep. Bluemle of Burlington recommended for the Committee on Appropriations (House) - 2025-05-13: Rep. Garofano of Essex reported for the Committee on Human Services (House) - 2025-05-13: Read second time (House) - 2025-05-13: Action Calendar: Unfinished Business (House) - 2025-05-12: Action Calendar: Favorable with Amendment (House) - 2025-05-09: Notice Calendar: Favorable with Amendment (House) - 2025-05-06: Referred to Committee on Appropriations per Rule 35(a) (House) - 2025-05-06: Notice Calendar: Favorable with Amendment (House) - 2025-01-21: Read first time and referred to the Committee on Human Services (House) ## Bill text - As Enacted (ACT 98)Opens in a new window, 2026-05-27: [PDF](https://legislature.vermont.gov/Documents/2026/Docs/ACTS/ACT098/ACT098%20As%20Enacted.pdf) - As Passed by Both Chambers, 2026-05-12: [PDF](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As Passed by Both House and Senate Official.pdf) - As Passed by Both Chambers (Unofficial), 2026-05-12: [PDF](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As Passed by Both House and Senate Unofficial.pdf) - Senate Proposal of Amendment, 2026-05-04: [PDF](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 Senate proposal of amendment Official.pdf) - Senate Proposal of Amendment (Unofficial), 2026-05-04: [PDF](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 Senate Proposal of Amendment Unofficial.pdf) - As Passed by the House, 2025-05-15: [PDF](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As passed by the House Official.pdf) - As Passed by the House (Unofficial), 2025-05-15: [PDF](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As Passed by the House Unofficial.pdf) - As Introduced, 2025-01-17: [PDF](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As Introduced.pdf) ## Related bills - S.328: An act relating to housing and common interest communities (signed) - S.327: An act relating to economic development (signed) - S.313: An act relating to transforming Vermont’s career technical education system (signed) - S.323: An act relating to miscellaneous agricultural subjects (signed) - S.326: An act relating to miscellaneous amendments to laws relating to motor vehicles (signed) - S.298: An act relating to voter protections (signed) ## Sources - [As Enacted (ACT 98)Opens in a new window (PDF)](https://legislature.vermont.gov/Documents/2026/Docs/ACTS/ACT098/ACT098%20As%20Enacted.pdf) - [As Passed by Both Chambers (PDF)](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As Passed by Both House and Senate Official.pdf) - [As Passed by Both Chambers (Unofficial) (PDF)](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As Passed by Both House and Senate Unofficial.pdf) - [Senate Proposal of Amendment (PDF)](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 Senate proposal of amendment Official.pdf) - [Senate Proposal of Amendment (Unofficial) (PDF)](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 Senate Proposal of Amendment Unofficial.pdf) - [As Passed by the House (PDF)](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As passed by the House Official.pdf) - [As Passed by the House (Unofficial) (PDF)](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As Passed by the House Unofficial.pdf) - [As Introduced (PDF)](https://legislature.vermont.gov/Documents/2026/Docs/BILLS/H-0046/H-0046 As Introduced.pdf) ## Related - [S.328: An act relating to housing and common interest communities](https://policyrisk.com/state-bill/VT-S328-2026) - [S.327: An act relating to economic development](https://policyrisk.com/state-bill/VT-S327-2026) - [S.313: An act relating to transforming Vermont’s career technical education system](https://policyrisk.com/state-bill/VT-S313-2026) - [S.323: An act relating to miscellaneous agricultural subjects](https://policyrisk.com/state-bill/VT-S323-2026) - [S.326: An act relating to miscellaneous amendments to laws relating to motor vehicles](https://policyrisk.com/state-bill/VT-S326-2026) - [S.298: An act relating to voter protections](https://policyrisk.com/state-bill/VT-S298-2026) - [Vermont bills](https://policyrisk.com/states/vermont/bills) - [Vermont state hub](https://policyrisk.com/states/vermont) - [All state legislation](https://policyrisk.com/state-bills) Source: PRIA, https://policyrisk.com/state-bill/VT-H46-2026 (as of 2026-11-01).