CDC Plans National Baby Health Data Network for Comments
Published Date: 7/18/2025
Notice
Summary
The CDC wants your thoughts on a new plan to improve how we track diseases in newborn babies across the U.S. This project will create a safe, national data system for states to share important health info, helping catch diseases earlier. It affects health workers and families, aims to save time and money, and is open for public comments now!
Analyzed Economic Effects
2 provisions identified: 2 benefits, 0 costs, 0 mixed.
Earlier disease detection for newborns
If you are a parent or guardian, the CDC proposes ED3N, a national newborn screening data platform that will let states securely share newborn health information. The project is intended to help catch diseases earlier in newborns and aims to save families time and money.
Centralized secure data sharing for NBS programs
The CDC proposes a secure, central national data sharing resource (ED3N) for U.S. state and territorial newborn screening (NBS) programs. This will affect health workers and state/territorial NBS programs by providing a shared platform to report and access newborn screening data.
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