Sickle Cell Disease Comprehensive Care Act
Sponsored By: Representative Dunn (FL)
Introduced
Summary
This bill would expand Medicaid health homes to explicitly cover individuals with sickle cell disease. It would require dental and vision care for those enrollees, set reporting rules for states, and direct CMS to publish best practices for SCD-focused care.
Show full summary
- People with sickle cell disease and their families: Would let eligible Medicaid enrollees access sickle cell disease-focused health home services beginning January 1, 2026. Enrollees in those health homes must receive dental and vision services while enrolled.
- State Medicaid programs: Creates a specific pathway for states to submit a sickle cell disease-focused State plan amendment with distinct requirements and timelines. States with an approved amendment must submit a report by the last day of the eighth fiscal quarter the amendment is in effect on quality measures, access to care, and total health care expenditures.
- Providers and federal guidance: Requires the Secretary to publish best practices on the CMS website by June 30, 2026, drawing on clinical society guidelines and input from SCD providers and patient advocacy groups.
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Bill Overview
Analyzed Economic Effects
1 provisions identified: 1 benefits, 0 costs, 0 mixed.
Sickle cell Medicaid health homes with dental and vision
Starting January 1, 2026, states could create Medicaid health homes focused on sickle cell disease. The HHS Secretary would have to approve each state plan, so programs are not guaranteed. If a state runs one approved on or after that date, it would have to include dental and vision for people with sickle cell disease who enroll. This would apply even if the state does not offer those services to other Medicaid members. You would need to be on Medicaid and have sickle cell disease confirmed by newborn screening or another genetic test.
Sponsors & CoSponsors
Sponsor
Dunn (FL)
FL • R
Cosponsors
Davis (IL)
IL • D
Sponsored 9/8/2025
Carter (GA)
GA • R
Sponsored 9/8/2025
Figures
AL • D
Sponsored 9/8/2025
Bilirakis
FL • R
Sponsored 9/8/2025
Johnson (TX)
TX • D
Sponsored 9/8/2025
Del. Norton, Eleanor Holmes [D-DC-At Large]
DC • D
Sponsored 9/8/2025
McIver
NJ • D
Sponsored 9/8/2025
Fields
LA • D
Sponsored 9/8/2025
Green, Al (TX)
TX • D
Sponsored 9/8/2025
Gottheimer
NJ • D
Sponsored 9/8/2025
Tlaib
MI • D
Sponsored 9/8/2025
Johnson (GA)
GA • D
Sponsored 9/8/2025
Jackson (IL)
IL • D
Sponsored 9/8/2025
Davis (NC)
NC • D
Sponsored 9/8/2025
Soto
FL • D
Sponsored 9/8/2025
Budzinski
IL • D
Sponsored 9/8/2025
Sewell
AL • D
Sponsored 9/8/2025
Thompson (MS)
MS • D
Sponsored 9/8/2025
Moulton
MA • D
Sponsored 9/8/2025
Carson
IN • D
Sponsored 9/9/2025
Thanedar
MI • D
Sponsored 9/30/2025
Ivey
MD • D
Sponsored 9/30/2025
McBride
DE • D
Sponsored 9/30/2025
Vindman
VA • D
Sponsored 10/8/2025
Friedman
CA • D
Sponsored 12/3/2025
Jayapal
WA • D
Sponsored 3/3/2026
Wilson (SC)
SC • R
Sponsored 3/18/2026
Roll Call Votes
No roll call votes available for this bill.
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