Sickle Cell Disease Comprehensive Care Act
Sponsored By: Senator Cory Booker
Introduced
Summary
Creates a Medicaid option for sickle cell disease-focused health homes to coordinate medical, dental, and vision care for people with sickle cell disease. It would let states seek approval for a sickle cell disease-focused State plan amendment starting January 1, 2026 and requires CMS to publish best practices by June 30, 2026.
Show full summary
- Families and patients: People with sickle cell disease could access tailored health home services beginning Jan 1, 2026, and those enrolled must receive dental and vision services while in the health home.
- States and Medicaid programs: States could submit a sickle cell disease-focused State plan amendment and must report after the first eight fiscal quarters on care quality, access, and total spending using measures the Secretary specifies.
- Providers and advocates: CMS must publish best practices by June 30, 2026 based on clinical guidelines and consultation with sickle cell providers and patient groups to guide program design and outcome tracking.
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Bill Overview
Analyzed Economic Effects
1 provisions identified: 1 benefits, 0 costs, 0 mixed.
Medicaid health homes for sickle cell
If enacted, states could offer Medicaid health homes focused on sickle cell disease starting January 1, 2026. You would be eligible if you are enrolled in Medicaid and have sickle cell disease. States with approved programs would have to provide dental and vision care to enrollees, even if they do not offer those services to other Medicaid beneficiaries. States must report after the first eight fiscal year quarters on quality (including recovery outcomes), access, and total spending. CMS would publish best practices for these programs by June 30, 2026.
Sponsors & CoSponsors
Sponsor
Cory Booker
NJ • D
Cosponsors
Tim Scott
SC • R
Sponsored 2/25/2025
Bill Cassidy
LA • R
Sponsored 5/6/2025
Christopher Coons
DE • D
Sponsored 5/6/2025
Roll Call Votes
No roll call votes available for this bill.
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