A resolution designating February 27, 2025, as "Rare Disease Day".
Sponsored By: Senator John Barrasso
Passed Senate
Summary
Designates February 27, 2025, as "Rare Disease Day" to spotlight the needs of people with rare conditions. It defines a rare disease as affecting fewer than 200,000 people and notes more than 30 million Americans live with over 10,000 rare diseases. Children make up a large share of those affected and many conditions are serious or life threatening. The resolution highlights the Orphan Drug Act's 42nd anniversary, notes FDA and NIH efforts and approval trends, and calls for better awareness, earlier diagnosis, and stronger support for research and treatments.
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Bill Overview
No Economic Impacts Identified for this Bill
Sponsors & CoSponsors
Sponsor
John Barrasso
WY • R
Cosponsors
Richard Blumenthal
CT • D
Sponsored 2/27/2025
Amy Klobuchar
MN • D
Sponsored 2/27/2025
Roger Marshall
KS • R
Sponsored 2/27/2025
Tim Scott
SC • R
Sponsored 2/27/2025
Roger Wicker
MS • R
Sponsored 2/27/2025
Cory Booker
NJ • D
Sponsored 2/27/2025
Roll Call Votes
No roll call votes available for this bill.
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