SRES104119th Congress

A resolution designating February 27, 2025, as "Rare Disease Day".

Sponsored By: Senator John Barrasso

Passed Senate

Summary

Designates February 27, 2025, as "Rare Disease Day" to spotlight the needs of people with rare conditions. It defines a rare disease as affecting fewer than 200,000 people and notes more than 30 million Americans live with over 10,000 rare diseases. Children make up a large share of those affected and many conditions are serious or life threatening. The resolution highlights the Orphan Drug Act's 42nd anniversary, notes FDA and NIH efforts and approval trends, and calls for better awareness, earlier diagnosis, and stronger support for research and treatments.

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Bill Overview

No Economic Impacts Identified for this Bill

Sponsors & CoSponsors

Sponsor

John Barrasso

WY • R

Cosponsors

  • Richard Blumenthal

    CT • D

    Sponsored 2/27/2025

  • Amy Klobuchar

    MN • D

    Sponsored 2/27/2025

  • Roger Marshall

    KS • R

    Sponsored 2/27/2025

  • Tim Scott

    SC • R

    Sponsored 2/27/2025

  • Roger Wicker

    MS • R

    Sponsored 2/27/2025

  • Cory Booker

    NJ • D

    Sponsored 2/27/2025

Roll Call Votes

No roll call votes available for this bill.

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