A resolution expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Sponsored By: Senator Cory Booker
Introduced
Summary
This resolution would designate June 19, 2025 as World Sickle Cell Awareness Day and back actions to fight sickle cell disease. Equitable access to new treatments and broader newborn screening is the central focus.
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- Families and patients: Urges newborn screening and preventive care to reduce child mortality. It notes about 100,000 people in the U.S. have sickle cell disease and nearly 1 in 13 African-American babies are born with sickle cell trait.
- Researchers and clinicians: Calls for more empirical research and support for novel therapies. The resolution notes only four FDA-approved sickle cell therapies since 2017 and mentions two gene-based approvals as of December 2023, while hematopoietic stem cell transplant remains the only established cure.
- Federal and global policy: Urges the Department of Health and Human Services to build global policy solutions and domestic newborn screening resources, pushes to remove barriers within Medicare and Medicaid, and asks the President to form an interagency group (HHS, VA, NIH, FDA, CMS) to address access and bias.
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Bill Overview
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Sponsors & CoSponsors
Sponsor
Cory Booker
NJ • D
Cosponsors
Chris Van Hollen
MD • D
Sponsored 6/18/2025
Angela Alsobrooks
MD • D
Sponsored 6/23/2025
Roll Call Votes
No roll call votes available for this bill.
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