SRES620119th Congress

A resolution designating February 28, 2026, as "Rare Disease Day".

Sponsored By: Senator John Barrasso

Passed Senate

Summary

Rare Disease Day is designated for February 28, 2026 to spotlight rare conditions and push for better awareness, earlier diagnosis, and more treatments. The resolution notes that more than 30 million Americans live with over 10,000 rare diseases, defines a rare disease in the United States as one affecting fewer than 200,000 people, and highlights that children make up a large share of those affected. It records that about 95% of rare diseases do not yet have an FDA-approved treatment and that patients and families face financing, diagnosis, and access challenges. The resolution commemorates the 2026 anniversary of the Orphan Drug Act, cites National Institutes of Health research support, and highlights FDA efforts such as the Accelerating Rare Disease Cures Program. It also notes that 23 of the 46 novel drugs approved in 2025 were orphan-designated for rare diseases.

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Sponsors & CoSponsors

Sponsor

John Barrasso

WY • R

Cosponsors

  • Richard Blumenthal

    CT • D

    Sponsored 2/26/2026

  • Roger Marshall

    KS • R

    Sponsored 3/2/2026

  • Amy Klobuchar

    MN • D

    Sponsored 3/2/2026

  • Tim Scott

    SC • R

    Sponsored 3/2/2026

  • Cory Booker

    NJ • D

    Sponsored 3/2/2026

Roll Call Votes

No roll call votes available for this bill.

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