§244b Activities relating to cardiomyopathy

Summary

The Secretary, through the CDC Director, must send Congress a report within 18 months after December 23, 2024 that uses existing CDC work to explain how common cardiomyopathy is and how it affects people from birth through adulthood. The report must pay special attention to the course of the disease in children and adults and to how many emergency room visits and hospital stays are caused by cardiomyopathy. The report should be made public, but must follow all federal and state privacy laws. The Secretary must also create and publish a cardiomyopathy risk assessment for health care providers and patients. It must include basic facts on how often and how severely cardiomyopathy occurs, a worksheet to judge a person’s risk, a worksheet to track disease progression, and screening guidance for people at risk or with a family history. The CDC Director must get input from patient groups, medical societies for adult and pediatric care, and other federal agencies. Cardiomyopathy is defined in section 244a.