Title 42 — The Public Health and WelfareRelease 119-73

§285c–1 Data systems and information clearinghouses

Title 42 › Chapter CHAPTER 6A— - PUBLIC HEALTH SERVICE › Subchapter SUBCHAPTER III— - NATIONAL RESEARCH INSTITUTES › Part Part C— - Specific Provisions Respecting National Research Institutes › Subpart subpart 3— - national institute of diabetes and digestive and kidney diseases › § 285c–1

Last updated Apr 6, 2026|Official source

Summary

The Institute’s director must set up national data systems and information centers for diabetes, digestive diseases, and kidney and urologic diseases. The data systems will collect, store, study, find, and share information from patient groups and, if possible, from the general population to spot people at risk. The information centers will gather and spread easy-to-use facts for health workers, patients, and the public.

Full Legal Text

Title 42, §285c–1

The Public Health and Welfare — Source: USLM XML via OLRC

(a)The Director of the Institute shall (1) establish the National Diabetes Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with diabetes, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing diabetes, and (2) establish the National Diabetes Information Clearinghouse to facilitate and enhance knowledge and understanding of diabetes on the part of health professionals, patients, and the public through the effective dissemination of information.

(b)The Director of the Institute shall (1) establish the National Digestive Diseases Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with digestive diseases, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing digestive diseases, and (2) establish the National Digestive Diseases Information Clearinghouse to facilitate and enhance knowledge and understanding of digestive diseases on the part of health professionals, patients, and the public through the effective dissemination of information.

(c)The Director of the Institute shall (1) establish the National Kidney and Urologic Diseases Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with kidney and urologic diseases, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing kidney and urologic diseases, and (2) establish the National Kidney and Urologic Diseases Information Clearinghouse to facilitate and enhance knowledge and understanding of kidney and urologic diseases on the part of health professionals, patients, and the public through the effective dissemination of information.

Reference

Citations & Metadata

Citation

42 U.S.C. § 285c–1

Title 42 — The Public Health and Welfare

Last Updated

Apr 6, 2026

Release point: 119-73