§285e–5 — Title 42 The Public Health and Welfare | U.S. Code

§285e–5 Research relevant to appropriate services for individuals with Alzheimer’s disease and related dementias and their families

Title 42 › Chapter CHAPTER 6A— - PUBLIC HEALTH SERVICE › Subchapter SUBCHAPTER III— - NATIONAL RESEARCH INSTITUTES › Part Part C— - Specific Provisions Respecting National Research Institutes › Subpart subpart 5— - national institute on aging › § 285e–5

Last updated Apr 6, 2026|Official source

Summary

The Director of the Institute must run or fund research about the right services for people with Alzheimer’s disease and related dementias and their families. Within 6 months after November 14, 1986, the Director must send a research plan to the Chairman of the Council on Alzheimer’s Disease. The plan must study the disease’s spread and risk factors and must develop and test reliable diagnostic and assessment tools. The plan must use and coordinate with other Federal programs, centers, the Administration on Aging, State and local agencies, community groups, and private foundations. Within one year after sending the plan, and every year after that, the Director must send updates as needed and must consult with the Council chairman and Department agency heads when preparing or changing the plan. The Director may also create or fund model methods to help people with these disorders be more independent (including daily living skills) and to prevent or lessen secondary problems like confusion, falls, bladder or bowel incontinence, and bad effects from medicines. The Director may make model training curricula for health workers, aides, and family caregivers. The Council on Alzheimer’s Disease means the council set up in section 11211(a) of this title.

Title 42, §285e–5

The Public Health and Welfare — Source: USLM XML via OLRC

(a)The Director of the Institute shall conduct, or make grants for the conduct of, research relevant to appropriate services for individuals with Alzheimer’s disease and related dementias and their families.

(b)(1)Within 6 months after November 14, 1986, the Director of the Institute shall prepare and transmit to the Chairman of the Council on Alzheimer’s Disease (in this section referred to as the “Council”) a plan for the research to be conducted under subsection (a). The plan shall—

(A)provide for research concerning—

(i)the epidemiology of, and the identification of risk factors for, Alzheimer’s disease and related dementias; and

(ii)the development and evaluation of reliable and valid multidimensional diagnostic and assessment procedures and instruments; and

(B)ensure that research carried out under the plan is coordinated with, and uses, to the maximum extent feasible, resources of, other Federal programs relating to Alzheimer’s disease and related dementias, including centers supported under section 285e–2 of this title, centers supported by the National Institute of Mental Health on the psychopathology of the elderly, relevant activities of the Administration on Aging, other programs and centers involved in research on Alzheimer’s disease and related dementias supported by the Department, and other programs relating to Alzheimer’s disease and related dementias which are planned or conducted by Federal agencies other than the Department, State or local agencies, community organizations, or private foundations.

(2)Within one year after transmitting the plan required under paragraph (1), and annually thereafter, the Director of the Institute shall prepare and transmit to the Chairman of the Council such revisions of such plan as the Director considers appropriate.

(c)In preparing and revising the plan required by subsection (b), the Director of the Institute shall consult with the Chairman of the Council and the heads of agencies within the Department.

(d)the 11 So in original. Probably should be capitalized. Director of the Institute may develop, or make grants to develop—

(1)model techniques to—

(A)promote greater independence, including enhanced independence in performing activities of daily living and instrumental activities of daily living, for persons with Alzheimer’s disease and related disorders; and

(B)prevent or reduce the severity of secondary disabilities, including confusional episodes, falls, bladder and bowel incontinence, and adverse effects of prescription and over-the-counter medications, in such persons; and

(2)model curricula for health care professionals, health care paraprofessionals, and family caregivers, for training and application in the use of such techniques.

(e)For purposes of this section, the term “Council on Alzheimer’s Disease” means the council established in section 11211(a) 22 See References in Text note below. of this title.

Notes & Related Subsidiaries

Editorial Notes

References in Text

section 11211 of this title, referred to in subsec. (e), was repealed by Pub. L. 105–362, title VI, § 601(a)(2)(E), Nov. 10, 1998, 112 Stat. 3286. Codification Section was formerly classified to section 11241 of this title prior to renumbering by Pub. L. 100–607.

Amendments

1993—Subsec. (b)(1). Pub. L. 103–43, § 804(1), inserted “on Alzheimer’s Disease (in this section referred to as the ‘Council’)” after “Council”. Subsec. (e). Pub. L. 103–43, § 804(2), added subsec. (e). 1992—Subsec. (d). Pub. L. 102–507 added subsec. (d). 1988—Pub. L. 100–607, § 142(a), renumbered section 11241 of this title as this section. Subsec. (a). Pub. L. 100–607, § 142(d)(2)(A), substituted “the Institute” for “the National Institute on Aging”. Subsec. (b)(1). Pub. L. 100–607, § 142(d)(2)(B)(i)(I), in introductory provisions, substituted “the date of enactment of the Alzheimer’s Disease and Related Dementias Services Research Act of 1986” for “the date of enactment of this Act”, which for purposes of codification was translated as “November 14, 1986”, thus requiring no change in text. Pub. L. 100–607, § 142(d)(2)(B)(i)(II), in introductory provisions, substituted “the Institute” for “the National Institute on Aging”. Subsec. (b)(1)(B). Pub. L. 100–607, § 142(d)(2)(B)(ii), made technical amendment to reference to section 285e–2 of this title to correct reference to corresponding provision of original act. Subsecs. (b)(2), (c). Pub. L. 100–607, § 142(d)(2)(B)(iii), (C), substituted “the Institute” for “the National Institute on Aging”.