Title 42 — The Public Health and WelfareRelease 119-73

§300mm–3 Uniform data collection and analysis

Title 42 › Chapter CHAPTER 6A— - PUBLIC HEALTH SERVICE › Subchapter SUBCHAPTER XXXI— - WORLD TRADE CENTER HEALTH PROGRAM › Part Part A— - Establishment of Program; Advisory Committee › § 300mm–3

Last updated Apr 6, 2026|Official source

Summary

Make the WTC Program Administrator set up the same way to collect and analyze data about World Trade Center health conditions. The data must include claims, how common conditions are, and any new WTC-related illnesses. Everyone who gets monitoring or treatment under part B must be included, no matter where they live or which Clinical Center treats them. Each Clinical Center must send its data to its Data Center for analysis. The Data Centers must work with the World Trade Center Health Registry. All information must stay private and follow federal privacy rules, including HIPAA and the Privacy Act.

Full Legal Text

Title 42, §300mm–3

The Public Health and Welfare — Source: USLM XML via OLRC

(a)The WTC Program Administrator shall provide for the uniform collection of data, including claims data (and analysis of data and regular reports to the Administrator) on the prevalence of WTC-related health conditions and the identification of new WTC-related health conditions. Such data shall be collected for all individuals provided monitoring or treatment benefits under part B and regardless of their place of residence or Clinical Center of Excellence through which the benefits are provided. The WTC Program Administrator shall provide, through the Data Centers or otherwise, for the integration of such data into the monitoring and treatment program activities under this subchapter.

(b)Each Clinical Center of Excellence shall collect data described in subsection (a) and report such data to the corresponding Data Center for analysis by such Data Center.

(c)The WTC Program Administrator shall provide for collaboration between the Data Centers and the World Trade Center Health Registry described in section 300mm–52 of this title.

(d)The data collection and analysis under this section shall be conducted and maintained in a manner that protects the confidentiality of individually identifiable health information consistent with applicable statutes and regulations, including, as applicable, HIPAA privacy and security law (as defined in section 300jj–19(a)(2) of this title) and section 552a of title 5.

Reference

Citations & Metadata

Citation

42 U.S.C. § 300mm–3

Title 42 — The Public Health and Welfare

Last Updated

Apr 6, 2026

Release point: 119-73