9/11 Responders' ALS Plea Rejected: Not Enough Proof
Published Date: 1/22/2025
Notice
Summary
The World Trade Center Health Program reviewed requests to add ALS (a serious nerve disease) to its list of covered health conditions but found not enough proof to do so right now. This means responders and workers from 9/11 won’t see changes in their benefits related to ALS at this time. The decision was made official on January 22, 2025, with no new costs or coverage changes coming soon.
Analyzed Economic Effects
1 provisions identified: 0 benefits, 1 costs, 0 mixed.
ALS Not Added — WTC Benefits Unchanged
If you are an eligible World Trade Center responder or a 9/11 survivor, you will not get ALS (amyotrophic lateral sclerosis) added to the WTC Health Program list, so medical monitoring and treatment benefits for ALS will not change. The Administrator denied Petitions 031, 036, 039, and 053 on January 22, 2025, citing insufficient scientific evidence.
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