CDC Plans National Baby Health Data Network for Comments
Published Date: 7/18/2025
Notice
Summary
The CDC wants your thoughts on a new plan to improve how we track diseases in newborn babies across the U.S. This project will create a safe, national data system for states to share important health info, helping catch diseases earlier. It affects health workers and families, aims to save time and money, and is open for public comments now!
Analyzed Economic Effects
2 provisions identified: 2 benefits, 0 costs, 0 mixed.
Earlier disease detection for newborns
If you are a parent or guardian, the CDC proposes ED3N, a national newborn screening data platform that will let states securely share newborn health information. The project is intended to help catch diseases earlier in newborns and aims to save families time and money.
Centralized secure data sharing for NBS programs
The CDC proposes a secure, central national data sharing resource (ED3N) for U.S. state and territorial newborn screening (NBS) programs. This will affect health workers and state/territorial NBS programs by providing a shared platform to report and access newborn screening data.
Personalized for You
How does this regulation affect your finances?
Personalize government policy and PRIA will tell you what this federal register document means for your household, plus every other regulation we track. PRIA reads each provision against your financial profile to show you exactly what matters to your wallet.
Key Dates
Department and Agencies
Related Federal Register Documents
2026-20644, Solicitation of Nominations for Appointment to the Advisory Council for the Elimination of Tuberculosis
The CDC is looking for experts to join the Advisory Council for the Elimination of Tuberculosis (ACET) to help fight and eventually end TB. If you know a lot about TB or related health fields and aren’t a federal employee, you can apply by January 4, 2027. This is a great chance to shape TB policies and research for up to four years—no pay mentioned, but big impact guaranteed!
2026-20346, Agency Forms Undergoing Paperwork Reduction Act Review
The CDC is asking for your thoughts on updating their National Notifiable Diseases Surveillance System forms. If you or your agency use these forms, now’s the time to share feedback on how to make them easier and better. You’ve got 30 days to comment, helping shape a process that saves time and money while keeping public health info sharp.
2026-20344, Proposed Data Collection Submitted for Public Comment and Recommendations
The CDC wants your thoughts on a plan to collect info for the Public Health Crisis Response program, which helps fund quick action during health emergencies. This affects public health groups who rely on fast funding to tackle big health problems. Comments are open until December 4, 2026, so jump in and share your ideas to help shape this important effort!
2026-20351, Agency Forms Undergoing Paperwork Reduction Act Review
The CDC is asking for your thoughts on a new form to track diseases through wastewater. If you or your agency deal with this info, now’s the time to speak up—comments are open for 30 days. This review helps make sure the form is useful, clear, and not a hassle, with no new costs expected.
2026-20348, Proposed Data Collection Submitted for Public Comment and Recommendations
The CDC wants your thoughts on a plan to keep tracking and approving respirators, the masks that help protect us from breathing in harmful stuff. This affects companies making these masks and anyone who uses them, making sure the masks stay safe and reliable. You’ve got until December 4, 2026, to share your ideas—no money changes now, just a chance to help shape the rules!
2026-19766, Proposed Data Collection Submitted for Public Comment and Recommendations
The CDC wants to keep collecting info about its Colorectal Cancer Control Program to help fight cancer better. They’re asking the public and other agencies to share thoughts by November 27, 2026. This ongoing data collection involves surveys and reports from clinics, aiming to improve health outcomes without adding extra costs.
Previous / Next Documents
Previous: 2025-13509, Agency Forms Undergoing Paperwork Reduction Act Review
The CDC is asking for your thoughts on a new form about health problems linked to medical tourism. They want to make sure the form is useful, clear, and not too much work for people to fill out. You’ve got 30 days to share your ideas, so jump in and help shape this important health check!
Next: 2025-13511, Proposed Data Collection Submitted for Public Comment and Recommendations
The CDC wants your thoughts on extending a survey that checks how well respirators and protective clothing work for U.S. workers. This helps make sure safety gear fits right and keeps people safe without adding extra hassle. If you work with or use this gear, your input matters before the project continues!