NIH Refines Rules for Protecting Your Genetic Secrets
Published Date: 12/18/2025
Notice
Summary
The NIH is updating its rules on how researchers share human genetic data to keep it safe and easy to use. They’re proposing a new policy to clearly say which data needs special access and simplifying the existing genomic data sharing rules. Researchers and institutions must share feedback by March 18, 2026, so these changes can help protect privacy without slowing down science or adding extra costs.
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