CDC Proposes Electronic Tracking of Kids' Chronic Illnesses Like CFS
Published Date: 2/11/2026
Notice
Summary
The CDC wants your thoughts on a plan to keep track of chronic illnesses like Chronic Fatigue Syndrome in school kids using new electronic tools. This helps improve health info while making data collection easier for everyone involved. If you have ideas or concerns, send them in by April 13, 2026—no cost to you, just your voice!
Analyzed Economic Effects
2 provisions identified: 1 benefits, 1 costs, 0 mixed.
School surveillance may speed ME/CFS diagnosis
The CDC plans a national rollout of School-Based Active Surveillance (SBAS) using an electronic data collection platform and education for school nurses to track Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in children. This could help school nurses spot symptoms sooner, expedite diagnosis and management for affected students, and improve measurement of ME/CFS burden to inform future plans to improve children’s healthcare.
Time burden on school nurses and staff
The expanded data collection will involve more school nurses and others and the CDC estimates an annualized total of 631 burden hours for respondents. The notice states there is no monetary cost to respondents other than their time to participate.
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