DeOndra Dixon INCLUDE Project Act of 2025
Sponsored By: Representative DeGette, Diana [D-CO-1]
Introduced
Summary
Would create the INCLUDE Project, a focused NIH program to study Down syndrome and its co-occurring conditions across the lifespan. It would authorize the NIH Director to support targeted research on causes, biomarkers, clinical trials, and interventions to improve diagnosis, treatment, and daily functioning.
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- Families: Would fund research aimed at improving quality of life for people with Down syndrome and their families, including studies on co-occurring conditions such as Alzheimer's disease and autoimmunity.
- Researchers and clinical trials: Would promote high-risk, high-reward science, expand lifespan cohort studies, and increase the number of clinical trials that include or specifically enroll participants with Down syndrome.
- NIH coordination and oversight: Would require the NIH Director to coordinate institutes and centers, avoid duplicative projects, consult stakeholders and patient advocates, and deliver biennial reports to Congress cataloging supported research and any real-world evidence.
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Bill Overview
Analyzed Economic Effects
1 provisions identified: 1 benefits, 0 costs, 0 mixed.
NIH project for Down syndrome research
If enacted, NIH would start the INCLUDE Project to study Down syndrome across the lifespan. It would fund high‑risk research, expand clinical trials that include people with Down syndrome, and study related conditions like Alzheimer’s and autoimmunity. It would also work to find body signs that help with risk, diagnosis, and treatment, and support training to improve daily life for people and families. NIH would coordinate work across its centers, avoid duplicate efforts, and consult patient advocates. NIH would report to Congress every two years on progress and real‑world evidence.
Sponsors & CoSponsors
Sponsor
DeGette, Diana [D-CO-1]
CO • D
Cosponsors
Hudson
NC • R
Sponsored 5/19/2025
Rep. DeLauro, Rosa L. [D-CT-3]
CT • D
Sponsored 5/19/2025
Cole
OK • R
Sponsored 5/19/2025
Del. Norton, Eleanor Holmes [D-DC-At Large]
DC • D
Sponsored 5/19/2025
Stauber
MN • R
Sponsored 5/19/2025
Rep. Tonko, Paul [D-NY-20]
NY • D
Sponsored 10/10/2025
Rep. Pettersen, Brittany [D-CO-7]
CO • D
Sponsored 10/10/2025
Craig
MN • D
Sponsored 10/10/2025
Crow
CO • D
Sponsored 11/12/2025
Rep. Neguse, Joe [D-CO-2]
CO • D
Sponsored 11/19/2025
Rep. Pocan, Mark [D-WI-2]
WI • D
Sponsored 1/7/2026
Rep. Wagner, Ann [R-MO-2]
MO • R
Sponsored 2/11/2026
Rep. Ross, Deborah K. [D-NC-2]
NC • D
Sponsored 2/13/2026
Kustoff
TN • R
Sponsored 2/20/2026
Rep. Subramanyam, Suhas [D-VA-10]
VA • D
Sponsored 3/3/2026
Rep. Nadler, Jerrold [D-NY-12]
NY • D
Sponsored 3/3/2026
Rep. Walkinshaw, James R. [D-VA-11]
VA • D
Sponsored 3/3/2026
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov