DeOndra Dixon INCLUDE Project Act of 2025
Sponsored By: Senator John Hickenlooper
Introduced
Summary
Would create the INCLUDE Project, a federally coordinated research and training program focused on Down syndrome and its co-occurring conditions across the lifespan. It would support basic science, grow clinical trials that include or target people with Down syndrome, and push for biomarkers and treatments to improve daily functioning and health outcomes.
Show full summary
- Families and people with Down syndrome would see research aimed at improving quality of life and treating common co-occurring conditions such as congenital heart disease, autoimmune disorders, and Alzheimer's disease. The bill notes about 6,000 U.S. births per year and a life expectancy now near 60 years.
- Researchers would receive funding and technical assistance for high-risk, high-reward studies, creation of large study populations, and clinical trials expressly for or inclusive of people with Down syndrome.
- The National Institutes of Health would coordinate related activities across its institutes, avoid duplicative work, and provide biennial reports to Congress cataloging supported research and any real-world clinical evidence.
Personalized for You
How does this bill affect your finances?
Personalize government policy and PRIA will tell you what this bill means for your household, plus every other piece of legislation we track. PRIA reads each provision against your financial profile to show you exactly what matters to your wallet.
Bill Overview
Analyzed Economic Effects
1 provisions identified: 1 benefits, 0 costs, 0 mixed.
More NIH Research on Down Syndrome
If enacted, the bill would create the INCLUDE Project, a new NIH program to study Down syndrome. NIH would run the program directly or fund grants and contracts. The project would fund basic, clinical, and translational research, build a large diverse study cohort, and expand clinical trials that include people with Down syndrome. It would study chromosome 21 effects, biomarkers, co-occurring conditions like Alzheimer’s, and ways to improve daily living. NIH would coordinate work across its institutes, give technical help to grantees, and send Congress a cataloging report every two years. The bill does not set funding amounts and would not change taxes or federal benefit eligibility.
Sponsors & CoSponsors
Sponsor
John Hickenlooper
CO • D
Cosponsors
Markwayne Mullin
OK • R
Sponsored 5/21/2025
Sen. Bennet, Michael F. [D-CO]
CO • D
Sponsored 7/28/2025
Sen. Padilla, Alex [D-CA]
CA • D
Sponsored 9/16/2025
Shelley Capito
WV • R
Sponsored 9/16/2025
Sen. Coons, Christopher A. [D-DE]
DE • D
Sponsored 10/8/2025
Sen. Van Hollen, Chris [D-MD]
MD • D
Sponsored 10/8/2025
Sen. Moran, Jerry [R-KS]
KS • R
Sponsored 5/21/2025
Sen. Booker, Cory A. [D-NJ]
NJ • D
Sponsored 5/21/2025
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov