SRES780119th Congress
A resolution expressing support for the designation of June 19, 2026, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Sponsored By: Senator Booker, Cory A. [D-NJ]
Introduced
Summary
Designating June 19, 2026, as World Sickle Cell Awareness Day would spotlight sickle cell disease and push for more research, early newborn screening, and improved care. It also emphasizes expanding equitable access to innovative therapies and urging federal agencies to coordinate policy and outreach.
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- People living with sickle cell disease and their families: Would get more public outreach and encouragement for events that raise awareness of SCD traits, preventive care, treatments, and patient support services.
- Medicare and Medicaid beneficiaries: The resolution calls for eliminating barriers to access to cell, gene, and gene-editing therapies for the most vulnerable patients.
- Federal health agencies: It urges the Department of Health and Human Services to create global policy solutions and encourages the President to form a Sickle Cell Disease Interagency Group including HHS, the Department of Veterans Affairs, the National Institutes of Health, the Food and Drug Administration, and the Centers for Medicare & Medicaid Services.
- Global and local health systems: The resolution asks HHS to partner with local governments to mobilize resources for newborn screening programs, therapeutic interventions, and support services worldwide.
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Bill Overview
No Economic Impacts Identified for this Bill
Sponsors & CoSponsors
Sponsor
Booker, Cory A. [D-NJ]
NJ • D
Cosponsors
Sen. Van Hollen, Chris [D-MD]
MD • D
Sponsored 6/18/2026
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov