(a) The task force shall have the authority and responsibility to:(a) Identify gaps in care, coverage limitations, workforce shortages, and systemic barriers affecting individuals with rare diseases in the State of Mississippi;(b) Advise the Governor, Legislature, and relevant state agencies on evidence-based policy, regulatory, and funding recommendations to improve the quality, coordination, and accessibility of rare disease care;(c) Review and evaluate alternative funding programs and insurance coverage practices impacting access to rare disease therapies and assess their fiscal, clinical, and equity implications; and(d) Ensure that the perspectives and experiences of patients and caregivers are meaningfully represented and considered in all task force deliberations and recommendations.
(a) Identify gaps in care, coverage limitations, workforce shortages, and systemic barriers affecting individuals with rare diseases in the State of Mississippi;
(b) Advise the Governor, Legislature, and relevant state agencies on evidence-based policy, regulatory, and funding recommendations to improve the quality, coordination, and accessibility of rare disease care;
(c) Review and evaluate alternative funding programs and insurance coverage practices impacting access to rare disease therapies and assess their fiscal, clinical, and equity implications; and
(d) Ensure that the perspectives and experiences of patients and caregivers are meaningfully represented and considered in all task force deliberations and recommendations.