§15091 — Title 42 The Public Health and Welfare | U.S. Code

Summary

Congress requires strong help for families of children with disabilities. It says families save states money by caring for their children at home, but many families—especially those in underserved areas—lack access to the right supports. Medical advances mean people with disabilities live longer, and that puts extra pressure on family caregivers and state services. In 1996, 49 States had family support programs like cash payments and respite care, but the law says those programs need to be bigger, better coordinated, and easier to use. The law’s goals are to fund state systems that let families direct their own care, promote family leadership in planning and policy, get agencies to work together, and increase funding, access, and services. Programs funded under this part must be family-focused and led by families and must help families raise their children at home.

Title 42, §15091

The Public Health and Welfare — Source: USLM XML via OLRC

(a)Congress makes the following findings:

(1)It is in the best interest of our Nation to preserve, strengthen, and maintain the family.

(2)Families of children with disabilities provide support, care, and training to their children that can save States millions of dollars. Without the efforts of family caregivers, many persons with disabilities would receive care through State-supported out-of-home placements.

(3)Most families of children with disabilities, especially families in unserved and underserved populations, do not have access to family-centered and family-directed services to support such families in their efforts to care for such children at home.

(4)Medical advances and improved health care have increased the life span of many people with disabilities, and the combination of the longer life spans and the aging of family caregivers places a continually increasing demand on the finite service delivery systems of the States.

(5)In 1996, 49 States provided family support initiatives in response to the needs of families of children with disabilities. Such initiatives included the provision of cash subsidies, respite care, and other forms of support. There is a need in each State, however, to strengthen, expand, and coordinate the activities of a system of family support services for families of children with disabilities that is easily accessible, avoids duplication, uses resources efficiently, and prevents gaps in services to families in all areas of the State.

(6)The goals of the Nation properly include the goal of providing to families of children with disabilities the family support services necessary—

(A)to support the family;

(B)to enable families of children with disabilities to nurture and enjoy their children at home;

(C)to enable families of children with disabilities to make informed choices and decisions regarding the nature of supports, resources, services, and other assistance made available to such families; and

(D)to support family caregivers of adults with disabilities.

(b)The purposes of this subchapter are—

(1)to promote and strengthen the implementation of comprehensive State systems of family support services, for families with children with disabilities, that are family-centered and family-directed, and that provide families with the greatest possible decisionmaking authority and control regarding the nature and use of services and support;

(2)to promote leadership by families in planning, policy development, implementation, and evaluation of family support services for families of children with disabilities;

(3)to promote and develop interagency coordination and collaboration between agencies responsible for providing the services; and

(4)to increase the availability of, funding for, access to, and provision of family support services for families of children with disabilities.

(c)It is the policy of the United States that all programs, projects, and activities funded under this subchapter shall be family-centered and family-directed, and shall be provided in a manner consistent with the goal of providing families of children with disabilities with the support the families need to raise their children at home.

Statutory Notes and Related Subsidiaries

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For

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of this subchapter as the “Families of Children With Disabilities Support Act of 2000”, see section 201 of Pub. L. 106–402, set out as a note under section 15001 of this title.

§15091 Findings, Purposes, and Policy

Summary

Title 42, §15091

Notes & Related Subsidiaries

Statutory Notes and Related Subsidiaries

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