§244b Activities Relating to Cardiomyopathy

Summary

The Health Secretary, through the CDC director, must send Congress a report no later than 18 months after December 23, 2024 about what CDC activities have shown about how common and how cardiomyopathy works from birth through adulthood. The report must look especially at the disease course for kids and adults and at how often cardiomyopathy causes emergency room visits and hospital stays. The report should be shared with the public, but only in ways that follow all federal and state privacy laws. The Health Secretary must also make and publish a cardiomyopathy risk assessment for doctors and people. It must include basic facts about how common and serious cardiomyopathy is (all types and ages), a simple worksheet to check if someone is at risk, a worksheet to check how far the condition has progressed, and screening guidance for people at risk or with a family history. The CDC director must get input from patient advocacy groups, medical societies that treat children and adults with cardiomyopathy, and other federal agencies. The law uses the definition of cardiomyopathy found in section 244a.