§244b Activities Relating to Cardiomyopathy

Summary

Within 18 months after December 23, 2024, the Secretary, through the CDC Director, must send Congress a report about what CDC’s current work has shown about cardiomyopathy from birth through adulthood. The report must focus on how the condition progresses in children and adults and on estimates of cardiomyopathy-related emergency room visits and hospital stays. The report should be shared with the public unless doing so would break federal or state privacy laws. The Secretary must also create and publish a cardiomyopathy risk assessment for doctors and for people. It must include simple background information on how common and how serious cardiomyopathy is (all types and ages), a worksheet to help decide if someone is at risk, a worksheet to track how far the disease has progressed, and screening guidance for people at risk or with a family history. The CDC Director must get input from patient groups, medical societies for adult and pediatric care, and other federal agencies. The term “cardiomyopathy” is defined in section 244a.