Title 42, The Public Health and WelfareRelease 119-110

§285c–1 Data Systems and Information Clearinghouses

Title 42 › CHAPTER 6A — PUBLIC HEALTH SERVICE › SUBCHAPTER III — NATIONAL RESEARCH INSTITUTES › Part C — Specific Provisions Respecting National Research Institutes › subpart 3 — national institute of diabetes and digestive and kidney diseases › § 285c–1

Last updated Sep 22, 2026|Official source

Summary

The Director of the Institute must set up national data systems and information centers for diabetes, digestive diseases, and kidney and urologic diseases. Each data system will gather, store, study, and share health data from people with those conditions. When possible, the systems should also include data from the general public to help find people at risk. Each information center will collect and share clear information to help doctors, patients, and the public understand these diseases.

Full Legal Text

Title 42, §285c–1

The Public Health and Welfare, Source: USLM XML via OLRC

(a)National Diabetes Data System and National Diabetes Clearinghouse

The Director of the Institute shall (1) establish the National Diabetes Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with diabetes, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing diabetes, and (2) establish the National Diabetes Information Clearinghouse to facilitate and enhance knowledge and understanding of diabetes on the part of health professionals, patients, and the public through the effective dissemination of information.

(b)National Digestive Diseases Data System and National Digestive Diseases Information Clearinghouse

The Director of the Institute shall (1) establish the National Digestive Diseases Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with digestive diseases, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing digestive diseases, and (2) establish the National Digestive Diseases Information Clearinghouse to facilitate and enhance knowledge and understanding of digestive diseases on the part of health professionals, patients, and the public through the effective dissemination of information.

(c)National Kidney and Urologic Diseases Data System and National Kidney and Urologic Diseases Information Clearinghouse

The Director of the Institute shall (1) establish the National Kidney and Urologic Diseases Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with kidney and urologic diseases, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing kidney and urologic diseases, and (2) establish the National Kidney and Urologic Diseases Information Clearinghouse to facilitate and enhance knowledge and understanding of kidney and urologic diseases on the part of health professionals, patients, and the public through the effective dissemination of information.

Reference

Citations & Metadata

Citation

42 U.S.C. § 285c–1

Title 42, The Public Health and Welfare

Last Updated

Sep 22, 2026

Release point: 119-110