Title 42, The Public Health and WelfareRelease 119-73not60

§285c–1 Data Systems and Information Clearinghouses

Title 42 › Chapter 6A— PUBLIC HEALTH SERVICE › Subchapter III— NATIONAL RESEARCH INSTITUTES › Part C— Specific Provisions Respecting National Research Institutes › Subpart 3— national institute of diabetes and digestive and kidney diseases › § 285c–1

Last updated Apr 5, 2026|Official source

Summary

The Director of the Institute must create three national data systems and matching information clearinghouses — one for diabetes, one for digestive diseases, and one for kidney and urologic diseases. Each data system must collect, store, study, access, and share health data from patients and, when possible, include general population data to help find people who are at risk. Each clearinghouse must gather and share clear information so health professionals, patients, and the public can better understand these diseases.

Full Legal Text

Title 42, §285c–1

The Public Health and Welfare, Source: USLM XML via OLRC

(a)The Director of the Institute shall (1) establish the National Diabetes Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with diabetes, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing diabetes, and (2) establish the National Diabetes Information Clearinghouse to facilitate and enhance knowledge and understanding of diabetes on the part of health professionals, patients, and the public through the effective dissemination of information.

(b)The Director of the Institute shall (1) establish the National Digestive Diseases Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with digestive diseases, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing digestive diseases, and (2) establish the National Digestive Diseases Information Clearinghouse to facilitate and enhance knowledge and understanding of digestive diseases on the part of health professionals, patients, and the public through the effective dissemination of information.

(c)The Director of the Institute shall (1) establish the National Kidney and Urologic Diseases Data System for the collection, storage, analysis, retrieval, and dissemination of data derived from patient populations with kidney and urologic diseases, including, where possible, data involving general populations for the purpose of detection of individuals with a risk of developing kidney and urologic diseases, and (2) establish the National Kidney and Urologic Diseases Information Clearinghouse to facilitate and enhance knowledge and understanding of kidney and urologic diseases on the part of health professionals, patients, and the public through the effective dissemination of information.

Reference

Citations & Metadata

Citation

42 U.S.C. § 285c–1

Title 42, The Public Health and Welfare

Last Updated

Apr 5, 2026

Release point: 119-73not60