PRIA, Government Policy, Made Personal

Summary

The Director of the Institute must set up the Clearinghouse on Alzheimer’s Disease to collect and share information about services for people with Alzheimer’s and related dementias and their families. The Clearinghouse must gather, store, and make available information about research, demonstration projects, evaluations, and training. It must publish a yearly summary of the past 12 months and give that info on request to schools, research groups, and government or public agencies. The Clearinghouse may charge a reasonable fee for information given through a toll‑free phone line mentioned in the law. The heads of the Institute, the National Institute of Mental Health, and the National Center for Health Services Research and Health Care Technology Assessment must send summaries of part D research findings to the Clearinghouse.

Title 42, §285e–7

The Public Health and Welfare, Source: USLM XML via OLRC

(a)The Director of the Institute shall establish the Clearinghouse on Alzheimer’s Disease (hereinafter referred to as the “Clearinghouse”). The purpose of the Clearinghouse is the dissemination of information concerning services available for individuals with Alzheimer’s disease and related dementias and their families. The Clearinghouse shall—

(1)compile, archive, and disseminate information concerning research, demonstration, evaluation, and training programs and projects concerning Alzheimer’s disease and related dementias; and

(2)annually publish a summary of the information compiled under paragraph (1) during the preceding 12-month period, and make such information available upon request to appropriate individuals and entities, including educational institutions, research entities, and Federal and public agencies.

(b)The Clearinghouse may charge an appropriate fee for information provided through the toll-free telephone line established under subsection (a)(3).11 So in original. No subsec. (a)(3) has been enacted.

(c)The Director of the Institute, the Director of the National Institute of Mental Health, and the Director of the National Center for Health Services Research and Health Care Technology Assessment shall provide to the Clearinghouse summaries of the findings of research conducted under part D.

Notes & Related Subsidiaries

Editorial Notes

References in Text

Part D, referred to in subsec. (c), probably means part D of title IX of Pub. L. 99–660, Nov. 14, 1986, 100 Stat. 3808, which is classified to subchapter IV (§ 11251 et seq.) of chapter 118 of this title. Prior to renumbering by Pub. L. 100–607, this section was part of title IX of Pub. L. 99–660. Codification Section was formerly classified to section 11281 of this title prior to renumbering by Pub. L. 100–607.

Amendments

1988—Pub. L. 100–607, § 142(a), renumbered section 11281 of this title as this section. Subsec. (a). Pub. L. 100–607, § 142(d)(4)(A), substituted “the Institute” for “the National Institute on Aging” in introductory provisions. Subsec. (c). Pub. L. 100–607, § 142(d)(4)(B), substituted “the Institute” for “the National Institute on Aging” and “part D” for “part E”.

§285e–7 Clearinghouse on Alzheimer’s Disease