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Title 42, The Public Health and WelfareRelease 119-110

§285e–9 Alzheimer’s Disease Registry

Title 42 › CHAPTER 6A — PUBLIC HEALTH SERVICE › SUBCHAPTER III — NATIONAL RESEARCH INSTITUTES › Part C — Specific Provisions Respecting National Research Institutes › subpart 5 — national institute on aging › § 285e–9

Last updated Sep 22, 2026|Official source

Summary

The Director of the Institute can give grants to set up a registry that collects health data on Alzheimer’s disease and how often it occurs in the United States, to train staff to gather that data, and to support related work. To get a grant, an applicant must be an accredited school of medicine or public health with experience collecting this kind of health data and building disease registries, and must have access to a large patient group that includes people from diverse ethnic backgrounds.

Full Legal Text

Title 42, §285e–9

The Public Health and Welfare, Source: USLM XML via OLRC

(a)In general
The Director of the Institute may make a grant to develop a registry for the collection of epidemiological data about Alzheimer’s disease and its incidence in the United States, to train personnel in the collection of such data, and for other matters respecting such disease.
(b)Qualifications
To qualify for a grant under subsection (a) an applicant shall—
(1)be an accredited school of medicine or public health which has expertise in the collection of epidemiological data about individuals with Alzheimer’s disease and in the development of disease registries, and
(2)have access to a large patient population, including a patient population representative of diverse ethnic backgrounds.

Legislative History

Notes & Related Subsidiaries

Editorial Notes

Codification Section was formerly set out as a note under section 285e–2 of this title prior to renumbering by Pub. L. 103–43.

Amendments

1993—Pub. L. 103–43, § 801(b)(1), reenacted section catchline without change. Subsec. (a). Pub. L. 103–43, § 801(b)(1), substituted in heading “In general” for “Grant authority” and in text substituted “Director of the Institute” for “Director of the National Institute on Aging”. Subsec. (c). Pub. L. 103–43, § 801(b)(2), struck out subsec. (c) which authorized appropriations of $2,500,000 for grants to remain available until expended or through fiscal year 1989, whichever occurred first.

Reference

Citations & Metadata

Citation

42 U.S.C. § 285e–9

Title 42, The Public Health and Welfare

Last Updated

Sep 22, 2026

Release point: 119-110