PRIA, Government Policy, Made Personal

Summary

Organizations may apply to the Secretary for grants or contracts by giving the information the Secretary asks for, including a plan to evaluate the work. Grants can cover less than a whole state or region. Applicants must run or oversee the programs, keep all test results and medical records private unless the patient agrees or the data are anonymous, include community input when appropriate for voluntary genetic testing or counseling, and keep proper financial controls and records for federal money. The Secretary must give special consideration to groups that had sickle cell grants or contracts the year before.

Title 42, §300b–3

The Public Health and Welfare, Source: USLM XML via OLRC

(a)A grant or contract under this part may be made upon application submitted to the Secretary at such time, in such manner, and containing and accompanied by such information, as the Secretary may require, including assurances for an evaluation whether performed by the applicant or by the Secretary. Such grant or contract may be made available on less than a statewide or regional basis. Each applicant shall—

(1)provide that the programs and activities for which assistance under this part is sought will be administered by or under the supervision of the applicant;

(2)provide for strict confidentiality of all test results, medical records, and other information regarding testing, diagnosis, counseling, or treatment of any person treated, except for (A) such information as the patient (or his guardian) gives informed consent to be released, or (B) statistical data compiled without reference to the identity of any such patient;

(3)provide for community representation where appropriate in the development and operation of voluntary genetic testing or counseling programs funded by a grant or contract under this part; and

(4)establish fiscal control and fund accounting procedures as may be necessary to assure proper disbursement of and accounting of Federal funds paid to the applicant under this part.

(b)In making grants and entering into contracts for any fiscal year under section 241 of this title for projects described in section 300b–1 of this title the Secretary shall give special consideration to applications from entities that received grants from, or entered into contracts with, the Secretary for the preceding fiscal year for the conduct of comprehensive sickle cell centers or sickle cell screening and education clinics.

Notes & Related Subsidiaries

Editorial Notes

Prior Provisions

A prior section 300b–3, act

July 1, 1944, ch. 373, title XI, § 1104, as added

May 16, 1972, Pub. L. 92–294, § 3(c), 86 Stat. 138; amended Aug. 29, 1972, Pub. L. 92–414, § 4(3), 86 Stat. 652, authorized grants to be made upon application to Secretary and required supervision of programs by applicant, confidentiality of test results, medical records and other information obtained from treated person, community representation in programs, assurances by applicant that priority will be given to persons of child bearing years, and demonstration by applicant of proper fiscal control and accounting procedures, prior to repeal by Pub. L. 94–278, title IV, § 403(a), Apr. 22, 1976, 90 Stat. 407.

Amendments

1981—Subsec. (a)(4), (5). Pub. L. 97–35, § 2193(b)(2), redesignated par. (5) as (4). Former par. (4), which related to testing and counseling requirements, was struck out. Subsec. (b). Pub. L. 97–35, § 2193(b)(3), struck out subsec. (b) which related to grants and contracts under section 300b of this title. Former subsec. (c) was redesignated (b) and, as so redesignated, struck out reference to section 300b of this title. Subsec. (c). Pub. L. 97–35, § 2193(b)(3), redesignated subsec. (c) as (b). Subsec. (d). Pub. L. 97–35, § 2193(b)(3), struck out subsec. (d) which related to procedures applicable to grants, etc., under section 300b of this title. 1978—Subsec. (a). Pub. L. 95–626, § 205(c)(1), inserted requirement that application contain assurances for an evaluation whether performed by applicant or by Secretary and that grant or contract be made available on less than a statewide or regional basis. Subsec. (d). Pub. L. 95–626, § 205(c)(2), added subsec. (d).

Statutory Notes and Related Subsidiaries

Effective Date

of 1981 Amendment, Savings, and Transitional ProvisionsFor

Effective Date

, savings, and transitional provisions relating to amendment by Pub. L. 97–35, see section 2194 of Pub. L. 97–35, set out as a note under section 701 of this title.

§300b–3 Application; Special Consideration to Prior Sickle Cell Anemia Grant Recipients

Summary

Title 42, §300b–3

Notes & Related Subsidiaries

Editorial Notes

Prior Provisions

Amendments

Statutory Notes and Related Subsidiaries

Effective Date

Effective Date

Citations & Metadata