Expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Sponsored By: Representative Davis (IL)
Introduced
Summary
Boost equitable access to testing and lifesaving Sickle Cell Disease treatments, including new gene and cell therapies. This resolution would designate June 19, 2025 as World Sickle Cell Awareness Day and push federal and global action on screening, research, and care.
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- Families and patients: Would raise awareness, encourage newborn screening, and promote access to new therapies. It notes about 100,000 people with Sickle Cell Disease in the United States and 1–3 million with sickle cell trait.
- Care systems and federal programs: Calls for an interagency Sickle Cell Disease group and asks the Department of Health and Human Services to create global policy solutions and to reduce Medicare and Medicaid barriers to cell, gene, and gene-editing therapies.
- Global and public health: Encourages international cooperation and resources to expand newborn screening and treatments in high-burden regions where roughly 1,000 African births with SCD occur daily and more than half die before age five.
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Bill Overview
No Economic Impacts Identified for this Bill
Sponsors & CoSponsors
Sponsor
Davis (IL)
IL • D
Cosponsors
Sewell
AL • D
Sponsored 6/20/2025
Vindman
VA • D
Sponsored 10/24/2025
Roll Call Votes
No roll call votes available for this bill.
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