HRSA Pumps Funds into Autism Mother-Child Data Tracking
Published Date: 8/29/2025
Notice
Summary
HRSA is giving extra money to boost the Autism Longitudinal Data Project, which tracks mother-child health over time by linking important health databases. This funding helps the project keep growing, building on work that started in July 2024. Families, researchers, and health experts will benefit from better data to understand autism and health outcomes.
Analyzed Economic Effects
2 provisions identified: 2 benefits, 0 costs, 0 mixed.
Supplemental funding expands autism dataset
HRSA awarded supplemental funds through the Patient-Centered Outcomes Research Trust Fund to continue the Autism Longitudinal Data Project. The funding supports linking existing multi-agency datasets to create a comprehensive longitudinal mother‑child dataset, building on an initial phase that began in July 2024.
Families gain better autism health data
You (families) will benefit from improved data linking mother‑child health databases that aim to help researchers and health experts better understand autism and health outcomes; this work continues from July 2024 under a supplemental award in fiscal year 2024.
Personalized for You
How does this regulation affect your finances?
Personalize government policy and PRIA will tell you what this federal register document means for your household, plus every other regulation we track. PRIA reads each provision against your financial profile to show you exactly what matters to your wallet.
Key Dates
Department and Agencies
Related Federal Register Documents
2026-19936, Autism Longitudinal Data Project and Linking the Boston Birth Cohort and Pregnancy to Early Life Longitudinal Data System and Community-Level Health Databases: A Longitudinal Cohort of Mother-Child Dyads
Johns Hopkins University is getting nearly $600,000 to finish a big project linking health data from moms and their kids to better understand autism and early life health. This funding keeps the project going through August 2027, helping researchers track health over time and improve care. If the money stops, the final phase can’t happen, slowing progress for families and communities counting on these insights.
2026-20018, Recharter for the Council on Graduate Medical Education
The Council on Graduate Medical Education (COGME) has been officially rechartered as of September 30, 2026, to keep advising the government on doctor training and workforce needs. This affects medical schools, hospitals, and policymakers by continuing efforts to fix doctor shortages and improve training programs. No new funding changes are mentioned, but the council’s work will guide future health policies and education funding.
2026-19883, Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request; National Marrow Donor Program Patient Support Center Survey
The Health Resources and Services Administration (HRSA) is asking for public feedback on a survey that checks how happy patients and their families are with the National Marrow Donor Program’s support services. This survey helps improve care for people needing or having had a bone marrow transplant. Comments are open until October 29, 2026, and there’s no cost to participate—just your honest thoughts!
2026-19911, Modification of Living Organ Donation Reimbursement Program Eligibility Guidelines in Response To Honor Our Living Donors Act
Starting now, living organ donors can get reimbursed without worrying about the recipient’s household income thanks to the new Honor Our Living Donors Act. This change makes it easier for more donors to get up to $6,000 back for travel, lost wages, and care costs. The updated rules kick in right away, helping donors across the country keep giving life without financial stress.
2026-19886, AIM Incarcerated Women Resource Kit
In 2026, the government gave $750,000 to JSI Research & Training Institute to create a special resource kit for people who care for pregnant and new moms in jail. This kit will help healthcare and correctional staff provide better support for incarcerated women during pregnancy and after birth. The project runs from June 2026 to February 2027 and aims to improve care for a vulnerable group.
2026-19578, Health Center Program Performance Period Extensions
Health centers with current funding ending between December 2026 and February 2027 will get extra money and time to keep serving their communities without interruption. These 272 centers will get about $527 million total, extending their support through mid-2027 while they apply for new funding. This move ensures patients keep getting care smoothly while HRSA sorts out the next round of awards.
Previous / Next Documents
Previous: 2025-16647, Information Collection Request; Food Safety Certification for Specialty Crops (FSCSC) Program
The Farm Service Agency wants to keep collecting info for the Food Safety Certification for Specialty Crops program but with some updates. This affects farmers growing specialty crops who want to prove their food is safe. They’re asking for feedback now and planning to keep things running smoothly without extra costs or delays.
Next: 2025-16650, 30-Day Notice for the “Blanket Justification for National Endowment for the Arts Funding Application Guidelines and Requirements”
The National Endowment for the Arts is asking for approval to keep their funding application rules and guidelines as they are, making it easier for artists and organizations to apply for grants. This means less paperwork hassle and no big changes to how money is requested or given. The review is happening now, so applicants should stay tuned for updates!