Feds Assemble Baby Blood Test Brain Trust Workgroup
Published Date: 8/12/2026
Notice
Summary
HRSA provides funding to support a national center for newborn screening systems known as the National Center for Newborn Screening Systems Excellence (NBS Excel). In fiscal year 2026, supplemental funding is being provided to NBS Excel to establish a national newborn screening stakeholder workgroup. This workgroup will be a pathway for conditions to be considered and recommended for inclusion in the Recommended Uniform Screening Panel (RUSP) and to discuss national- level issues related to newborn screening. Membership will include representatives from a wide range of newborn screening experts and stakeholders. The award recipient will convene the workgroup and develop findings, reports, and recommendations for HRSA's review and consideration. HRSA will then make recommendations to the Secretary of Health and Human Services, who has final decision-making authority on updates to the RUSP.
Analyzed Economic Effects
3 provisions identified: 2 benefits, 1 costs, 0 mixed.
New RUSP additions trigger no-cost coverage
Conditions added to the Recommended Uniform Screening Panel (RUSP) become part of HRSA-supported preventive services; as a result, non-grandfathered health plans are required to cover those screenings without patient cost-sharing beginning one year after the Secretary adopts a condition for screening.
States retain discretion to adopt RUSP items
Even if the Secretary adopts a condition for the RUSP, states and territories are not required to screen for every RUSP condition; the RUSP functions as a national framework while state adoption decisions remain voluntary. As of May 2026, the RUSP contains 40 core and 26 secondary conditions.
National newborn screening workgroup created
HRSA provided a $700,000 supplemental award in fiscal year 2026 to the Association of Public Health Laboratories to establish a national newborn screening stakeholder workgroup (NBS Excel). The workgroup will be a formal pathway for conditions to be considered and recommended for inclusion in the Recommended Uniform Screening Panel (RUSP), will meet at least three times a year, and will be open to the public.
Personalized for You
How does this regulation affect your finances?
Personalize government policy and PRIA will tell you what this federal register document means for your household, plus every other regulation we track. PRIA reads each provision against your financial profile to show you exactly what matters to your wallet.
Key Dates
Department and Agencies
Related Federal Register Documents
2026-22403, Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request: Faculty Loan Repayment Program, OMB No. 0906-0082-Revision
The Health Resources and Services Administration (HRSA) is updating its Faculty Loan Repayment Program, which helps health pros from tough backgrounds pay off student loans in exchange for teaching at health schools. They’re asking for public feedback by December 3, 2026, before finalizing changes. This update could affect how applicants prove their eligibility and submit loan info, but it won’t change the money or service time required.
2026-21857, Agency Information Collection Activities: Submission to OMB for Review and Approval: Public Comment Request; Organ Procurement and Transplantation Network Board of Directors and Committee Member Applications and Forms
The Health Resources and Services Administration (HRSA) is asking for public feedback on new application forms for the Organ Procurement and Transplantation Network’s Board and committees. These forms help pick the right people to guide organ donation and transplant efforts across the U.S. If you want to share your thoughts, you’ve got until October 27, 2026, and there’s no cost to comment—just your voice!
2026-21672, National Vaccine Injury Compensation Program; List of Petitions Received
The National Vaccine Injury Compensation Program just shared a list of new petitions from people claiming vaccine-related injuries. If you or someone you know got hurt by certain vaccines, this program helps you seek compensation without blame. The Court of Federal Claims reviews these cases, and HRSA manages the process, keeping things fair and timely.
2026-21674, Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request: Advanced Nursing Education Program Specific Form OMB No. 0906-0089-Revision
HRSA is updating a form used by nursing schools that get grants to train advanced nurses. They’re keeping both full-time and part-time options for nurse midwives and anesthetists to keep things clear and consistent. If you have thoughts, you’ve got until November 23, 2026, to share them—no money changes, just smoother paperwork!
2026-21673, Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request: National Practitioner Data Bank for Adverse Information on Physicians and Other Health Care Practitioners-45 CFR Part 60 Regulations and Forms, OMB No. 0906-0081-Revision
HRSA is updating the rules and forms for the National Practitioner Data Bank, which tracks important info about doctors and health care workers. This helps hospitals and licensing boards keep health care safe and trustworthy. If you’re involved in health care reporting or checking, get ready for these changes and share your thoughts by November 23, 2026!
2026-21518, Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request; Maternal and Child Health Bureau Performance Measures for Discretionary Grant Information System, OMB No. 0915-0298-Revision
HRSA is updating how it collects info for maternal and child health grants by changing some form names and removing two forms that are now covered elsewhere. This affects grant applicants and program managers who report data. Public comments are open until November 20, 2026, before final approval, with no new costs involved.
Previous / Next Documents
Previous: 2026-16395, Agency Information Collection Activities; Submission to the Office of Management and Budget (OMB) for Review and Approval; Comment Request; Implementation of Vessel Speed Restrictions To Reduce the Threat of Ship Collisions With North Atlantic Right Whales
The Department of Commerce, in accordance with the Paperwork Reduction Act of 1995 (PRA), invites the general public and other Federal agencies to comment on proposed, and continuing information collections, which helps us assess the impact of our information collection requirements and minimize the public's reporting burden. The purpose of this notice is to allow for 60 days of public comment preceding submission of the collection to OMB.
Next: 2026-16397, Agency Information Collection Activities: Comment Request on the Burden Related to the Application for Determination for Employee Benefit Plan
In accordance with the Paperwork Reduction Act of 1995, the IRS is inviting comments on the information collection request outlined in this notice.