CDC Proposes Forms for Secure Health Data Sharing
Published Date: 4/1/2026
Notice
Summary
The CDC wants your thoughts on new forms to keep sensitive research data safe when sharing it with approved users. This affects researchers who access confidential health info and helps protect privacy while supporting important studies. Comments are open until June 1, 2026, with no new costs for the public, just a chance to weigh in!
Analyzed Economic Effects
2 provisions identified: 0 benefits, 2 costs, 0 mixed.
Researchers must sign data-security forms
If you are a researcher approved to use NCHS restricted-use microdata, you must complete and sign data security forms before getting access. For in-person Research Data Center (RDC) access you must return the Data Use Agreement Form and the Designated Agent Agreement Form; for the NCHS Virtual Data Enclave (VDE) you must return the VDE Data Use Agreement Form, the Data Use Agreement Form, and the Designated Agent Agreement Form.
One-hour paperwork burden and possible notary fee
NCHS estimates each researcher spends about 1 hour to complete the data security forms, for an estimated 110 hours annually (330 hours over a three-year clearance). There is no monetary cost to researchers other than their time, except for a possible nominal notary fee if one is required.
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Key Dates
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