CDC Seeks Feedback on 9/11 Heroes Health Benefits Data Collection
Published Date: 5/5/2026
Notice
Summary
The CDC wants your thoughts on a plan to keep collecting info about health benefits for heroes who helped after 9/11, like firefighters and rescue workers. They’re making sure the process stays easy and useful without adding extra hassle. If you have ideas, speak up by July 6, 2026—this won’t cost you anything but could help improve care for these brave folks.
Analyzed Economic Effects
4 provisions identified: 4 benefits, 0 costs, 0 mixed.
WTC Health Program Scope and Duration
The World Trade Center (WTC) Health Program provides medical monitoring and treatment benefits to eligible responders (firefighters, law enforcement, rescue/recovery/cleanup workers) and eligible survivors (people present in the dust cloud or who lived/worked/attended school in the disaster area). The notice states the WTC Health Program has been authorized for 75 years, through 2090.
Annual Respondent Burden Reduced
The CDC says the annual paperwork burden for the World Trade Center Health Program will drop from 14,332 hours to 11,332 hours — a reduction of 3,000 hours per year. CDC requests OMB approval of the revised total of 11,332 annual burden hours as part of this information collection (OMB Control No. 0920-0891, exp. 2028-05-31).
Youth Cohort Form Simplified; PHI Removed
NIOSH will replace the previous Youth Research Cohort Registration Portal form with a new Youth Research Cohort Information Form and will eliminate the prior Youth Research Cohort Registration HIPAA Authorization Form that asked for protected health information. The revision is expected to reduce time for potential Youth Research Cohort (YRC) participants; CDC estimates 6,000 potential YRC respondents at 15 minutes each (1,500 annual burden hours) under the new form.
No Respondent Fees — Time Only
CDC states there are no additional costs to respondents other than their time to participate in the information collection. CDC requests OMB approval for the collection but specifies respondents will not incur fees or other monetary costs.
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Key Dates
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