NIH Seeks Comments on Research Data Hub Update
Published Date: 5/27/2026
Notice
Summary
The Eunice Kennedy Shriver National Institute of Child Health and Human Development wants your thoughts on updating their Data and Specimen Hub (DASH), a system that helps researchers share important health data and samples. If you’re involved in health research or data sharing, this affects you! Comments are open until July 27, 2026, and the update aims to make data collection easier without costing extra time or money.
Analyzed Economic Effects
2 provisions identified: 0 benefits, 1 costs, 1 mixed.
Researchers' data submission time burden
If you submit or request data or biospecimens through NICHD DASH, you must register and complete forms that take time. NICHD estimates the total annualized respondent burden is 1,010 hours across all forms, with average per-form times listed: User Registration 5 minutes, Institutional Certification 10 minutes, Data Request Annual Progress Report 30 minutes, Data Request 1 hour, Data and Biospecimen Catalog Submission 2 hours, and Biospecimen Request 1 hour. The package requests OMB approval for 3 years and reports a 6-hour reduction in the annualized burden; comments are due July 27, 2026.
Some recipient details may be published
NICHD may share certain information from data or biospecimen requests publicly: the Recipient's approved use of DASH data/biospecimens, the Recipient's name and institution, and significant findings reported in the Data Request Annual Progress Report. These items may appear on the DASH website or in publications describing DASH performance and value.
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