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HRES1290119th Congress

Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.

Sponsored By: Representative Tonko, Paul [D-NY-20]

Introduced

Summary

Integrating behavioral health into rare disease care is the resolution's central aim. It would urge federal agencies to prioritize mental health supports, workforce training, peer programs, and payor changes to better serve people with rare diseases.

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  • Families and patients: Recognizes that rare diseases affect about 25 to 30 million Americans, more than half of whom are children, and would push to make behavioral health an essential part of clinical pathways and research.
  • Caregivers: Highlights common caregiver burnout and trauma symptoms and encourages expansion of standardized peer support programs, including virtual and community models.
  • Clinicians and workforce: Calls for investment in the behavioral health workforce, especially child and adolescent psychiatry, psychology, and social work, and for incentives for continuing medical education on rare disease behavioral needs.
  • Payers and access: Urges public and private payors to evaluate low reimbursement and administrative barriers that limit integrated behavioral health services.
  • Federal agencies and partnerships: Encourages HHS, NIH, and CMS to prioritize behavioral health in rare disease initiatives and to coordinate with patient groups, academics, and communities.

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Bill Overview

No Economic Impacts Identified for this Bill

Sponsors & CoSponsors

Sponsor

Tonko, Paul [D-NY-20]

NY • D

Cosponsors

  • Rep. Bacon, Don [R-NE-2]

    NE • R

    Sponsored 5/14/2026

Roll Call Votes

No roll call votes available for this bill.

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