Expressing support for a "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Sponsored By: Representative Davis, Danny K. [D-IL-7]
Introduced
Summary
Equitable access to innovative sickle cell disease (SCD) therapies. This resolution would back World Sickle Cell Awareness Day and push federal attention to awareness, newborn screening, and access to current and emerging treatments.
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- Patients and families: Would highlight newborn screening, treatments, and support services for people living with SCD. The resolution notes about 100,000 people with SCD in the United States.
- Medicare and Medicaid beneficiaries: Would support removing barriers in Medicare and Medicaid to cell, gene, and gene-editing therapies so vulnerable patients can access approved cures and treatments.
- Global children and health systems: Urges the Department of Health and Human Services (HHS) to coordinate global policy and help expand newborn screening and treatment access. The preamble notes about 1,000 African children are born with SCD daily.
- Federal policymakers and agencies: Urges the President to form a Sickle Cell Disease interagency group including HHS, the Department of Veterans Affairs, the National Institutes of Health, the Food and Drug Administration, and the Centers for Medicare & Medicaid Services to coordinate policy and address bias in care.
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Bill Overview
Analyzed Economic Effects
3 provisions identified: 3 benefits, 0 costs, 0 mixed.
More sickle cell access for Medicare, Medicaid
This resolution would support eliminating barriers inside Medicare and Medicaid so vulnerable patients can get new sickle cell treatments. It names cell, gene, and gene-editing therapies as examples. The resolution would commit to fair access across income, race, and ethnicity. It would not itself change coverage rules or provide funding.
Federal sickle cell policy working group
This resolution would urge the President to form a Sickle Cell Disease Interagency Group. The group would include HHS, VA, NIH, FDA, and CMS. It would be asked to advance policies for fair and appropriate access to new sickle cell therapies and to consider access to future cures and healthcare bias. This resolution would be advisory and would not appropriate funds or change law.
HHS global sickle cell program support
This resolution would call on HHS to create global policy solutions for the international sickle cell community. It would urge HHS to work with local governments to expand newborn screening, treatments, and support services. The resolution would not itself provide funding or change who qualifies for benefits.
Sponsors & CoSponsors
Sponsor
Davis, Danny K. [D-IL-7]
IL • D
Cosponsors
Rep. Dunn, Neal P. [R-FL-2]
FL • R
Sponsored 6/18/2026
Roll Call Votes
No roll call votes available for this bill.
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