HRES1371119th Congress
Expressing support for a "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
Sponsored By: Representative Davis, Danny K. [D-IL-7]
Introduced
Summary
This bill would designate June 19, 2026 as World Sickle Cell Awareness Day and push a coordinated, equity-focused response to sickle cell disease centered on _equitable access to new sickle cell treatments_.
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- Families and newborns: would call for federal and local resources for newborn screening, therapeutic care, and support services. About 100,000 people in the U.S. live with sickle cell disease.
- Patients with SCD: would urge removing barriers in Medicare and Medicaid to innovative treatments, including cell, gene, and gene-editing therapies. The resolution notes two gene therapies had FDA approval by December 2023.
- Health agencies: would be asked to form a Sickle Cell Disease Interagency Group including HHS, VA, NIH, FDA, and CMS to coordinate policy on access and to address bias.
- Global and affected communities: would emphasize areas with high disease burden, such as sub-Saharan Africa, and encourage nationwide and global awareness activities to close survival gaps and push toward cures.
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Bill Overview
No Economic Impacts Identified for this Bill
Sponsors & CoSponsors
Sponsor
Davis, Danny K. [D-IL-7]
IL • D
Cosponsors
Rep. Dunn, Neal P. [R-FL-2]
FL • R
Sponsored 6/18/2026
Roll Call Votes
No roll call votes available for this bill.
View on Congress.gov