Rare brain disease MLD now mandatory in newborn screenings nationwide

2026-06188 — Agency Information Collection Activities: Proposed Collection: Public Comment Request; Information Collection Request Title: Black Lung Clinics Program Performance Measures, OMB No. 0915-0292-Revision

HRSA is updating how Black Lung Clinics report their yearly progress to make things clearer and easier for them. This affects clinics helping coal miners with lung disease, and HRSA wants your thoughts before finalizing the changes. Comments are due by June 1, 2026, and the update aims to keep the program effective without adding extra hassle or cost.

2026-05663 — Agency Information Collection Activities: Proposed Collection: Public Comment Request; Information Collection Request Title: Rural Health Care Coordination Program Performance Improvement Measures, OMB No. 0906-0024-Revision

HRSA is updating how it collects info from rural health programs that fight heart disease, cancer, stroke, and more. They want your thoughts on making reporting easier and clearer before sending the changes to the budget office. If you’re involved in rural health care, now’s the time to speak up by May 26, 2026—no extra costs, just better data!

2026-05253 — Agency Information Collection Activities: Proposed Collection: Public Comment Request; Information Collection Request Title: Delta States Rural Development Network Grant Program, OMB No. 0915-0386-Revision

HRSA is updating how it collects info from groups funded by the Delta States Rural Development Network Grant Program, which helps fight heart disease, diabetes, stroke, and obesity in rural Delta communities. They want your thoughts on the changes before sending them to the budget office. If you’re involved or interested, get your comments in by May 18, 2026—this helps make sure the program runs smoothly and shows real health improvements.

2026-05274 — Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request; Countermeasures Injury Compensation Program-OMB No. 0915-0334-Revision

HRSA is updating the forms and questions for the Countermeasures Injury Compensation Program to make things easier and clearer for people filing claims. This affects anyone who might get injured by certain medical countermeasures, like vaccines or treatments during emergencies. The public can comment on these changes until April 17, 2026, and no new costs are expected.

2026-05133 — Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request; Ryan White HIV/AIDS Program: Allocations Report Forms, OMB No. 0915-0318-Revision

HRSA is updating the Ryan White HIV/AIDS Program report forms to make it easier for grant recipients to track and share how they use funds. This change helps reduce paperwork by using an electronic system that pre-fills data, saving time and effort. If you’re involved in this program, get ready to send your comments by April 16, 2026, as these updates keep the money flowing smoothly and on track.

2026-04900 — Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request; The Maternal, Infant, and Early Childhood Home Visiting Program Performance Measurement Information System

HRSA is asking for public feedback on their plan to keep tracking how well the Maternal, Infant, and Early Childhood Home Visiting Program is doing. This program helps families in all 56 states, tribes, and territories by supporting home visits that improve early childhood health. Comments are open until April 13, 2026, and the info collected helps make sure the program stays effective without costing extra money.

Previous: 2025-23573 — Addition of Duchenne Muscular Dystrophy to the Recommended Uniform Screening Panel

Great news! Duchenne Muscular Dystrophy (DMD), a serious muscle disease affecting newborns, is now officially added to the list of conditions all babies should be screened for at birth. Starting one year after this announcement, health insurance plans must cover these screenings with no extra costs, helping families catch and treat DMD early for better outcomes.

Next: 2025-23576 — Agency Information Collection Activities; Comment Request; Accrediting Agencies Reporting Activities for Institutions and Programs-Database of Accredited Postsecondary Institution and Programs (DAPIP)

The Department of Education wants to keep collecting info from accrediting agencies about schools and programs without changing the current process. This helps keep the Database of Accredited Postsecondary Institutions and Programs (DAPIP) up to date. If you’re involved with these agencies, you can share your thoughts by February 20, 2026, but no new costs or big changes are planned.