Cancer Data Form Needs Your Boring Feedback by May 2026
Published Date: 4/1/2026
Notice
Summary
The National Cancer Institute (NCI) wants your thoughts on a form used to submit cancer genetic data to their Genomic Data Commons. If you work with cancer research data, this is your chance to comment before May 1, 2026. There’s no cost to participate, but your feedback helps keep data collection smooth and useful!
Analyzed Economic Effects
3 provisions identified: 3 benefits, 0 costs, 0 mixed.
Opportunity to Comment by May 1, 2026
If you work with cancer genomic data, you can submit comments about the NCI Genomic Data Commons Data Submission Request Form by May 1, 2026. The notice asks for public input through www.reginfo.gov and provides contact details for requesting the data collection instruments.
Reduced Annual Paperwork Burden
NCI is requesting an extension that reduces the estimated total number of respondents from 200 to 100 and lowers total annual burden hours from 50 hours to 25 hours. The average time per individual response remains 15 minutes (0.25 hours).
OMB Extension Requested for Three Years
The National Cancer Institute requests OMB approval for this information collection for 3 years, and the current OMB control shows an expiration date of 04/30/2026. The notice states there are no respondent costs other than time and estimates total annualized burden hours of 25.
Your PRIA Score
Personalized for You
How does this regulation affect your finances?
Sign up for a PRIA Policy Scan to see your personalized alignment score for this federal register document and every other regulation we track. We analyze your financial profile against policy provisions to show you exactly what matters to your wallet.
Key Dates
Department and Agencies
Related Federal Register Documents
2026-06501 — Government-Owned Inventions; Availability for Licensing
The National Institutes of Health is offering a cool new invention—special human antibodies that can fight certain cancers and autoimmune diseases—for companies to license and develop into treatments. This means businesses can jump on this opportunity to create powerful new medicines using government-backed research. Interested parties should act soon and may need to sign agreements to get full details.
2026-06283 — Prospective Grant of an Exclusive Patent License: Pigment Epithelium-Derived Factor (PEDF) Peptides and Use for Treating Retinal Degeneration
The National Eye Institute plans to give Perpetual Biosciences, Inc. an exclusive license to use special PEDF peptides to treat eye diseases that cause vision loss. This means the company will have the sole right to develop and sell this promising treatment, potentially helping millions with retinal degeneration. If you want to comment or apply for a license, act fast—submissions close April 16, 2026!
2026-05957 — Center for Scientific Review; Notice of Closed Meetings
The NIH’s Center for Scientific Review is holding several closed virtual meetings in April 2026 to review and decide on important research grant applications. These meetings affect scientists seeking funding in areas like neuroscience, cancer, and liver disease. No public access is allowed to protect private info and trade secrets, and these reviews help decide where millions in research money will go.
2026-05672 — National Institute on Deafness and Other Communication Disorders; Notice of Closed Meetings
The National Institute on Deafness and Other Communication Disorders is holding two closed meetings in late April and early May 2026 to review grant applications and evaluate researchers’ qualifications. These meetings affect scientists seeking funding and help ensure top-notch research gets supported. No public access means privacy is protected, and the process keeps the money flowing to the best projects on time.
2026-05673 — Center for Scientific Review; Notice of Closed Meetings
The Center for Scientific Review is holding several closed virtual meetings on April 17, 2026, to review and evaluate important grant applications in health and science fields. These meetings protect private info and trade secrets while deciding who gets funding. Researchers and organizations applying for grants should note these dates as they impact funding decisions but don’t involve public attendance or extra costs.
2026-05738 — Submission for OMB Review; 30-Day Comment Request; National Institutes of Health (NIH) Loan Repayment Programs, (Office of the Director)
The NIH is asking for a 30-day public comment on extending its Loan Repayment Programs that help doctors and scientists pay off their student loans while they do important health research. This extension keeps the program running smoothly with no big changes, and comments are due by April 23, 2026. If you’re a researcher with student loans, this program could save you money while you help improve health!
Previous / Next Documents
Previous: 2026-06316 — Issuance of Priority Review Voucher; Rare Pediatric Disease Product; YUVIWEL (navepegritide)
The FDA just gave Ascendis Pharma a special priority review voucher for their rare pediatric disease drug, YUVIWEL, which helps kids with achondroplasia grow taller. This voucher speeds up future drug reviews and can be a valuable asset, saving time and potentially money. Approved on February 27, 2026, this move highlights the FDA’s commitment to fast-tracking treatments for rare childhood conditions.
Next: 2026-06319 — Agency Information Collection Activities; Submission to the Office of Management and Budget (OMB) for Review and Approval; Comment Request; Pacific Islands Logbook Family of Forms
NOAA is asking to keep collecting fishing reports from Pacific Islands vessel operators to track fish stocks and protect endangered sea creatures. About 576 fishers spend around 16 minutes each reporting their trips and catches. This extension keeps the rules steady with no new costs, and you’ve got 30 more days to share your thoughts!
Take It Personal
Get Your Personalized Policy View
Start a Free Government Policy Watch to see how policy affects your household, then upgrade to PRIA Full Coverage for year-round monitoring.
Already have an account? Sign in