DPH-NEURO DISEASE PROGRESS ACT
Sponsored By: Kam Buckner (Democratic)
In Committee
Summary
Creates the Neurodegenerative Disease Patient Protection and Progress Act. Requires the Department of Public Health to convene a Neurodegenerative Disease Advisory Council within the Department. Sets forth provisions concerning the membership of the Advisory Council, terms of the members, meetings of the Advisory Council, and administrative support, and duties of the Advisory Council Provides that the Director of Public Health shall designate or hire a full-time Neurodegenerative Disease Coordinator within the Department to implement and administer the Act. Requires the Coordinator, acting through and under the supervision of the Director, and with input from the Advisory Council, to develop and publish a State plan to address neurodegenerative diseases. Sets forth required components of the Plan. Establishes a voluntary statewide clinical and population registry to collect de-identified information and, with the patient's informed consent, limited identifying information, to (i) improve understanding of burden imposed by neurodegenerative diseases, natural history, and outcomes, (ii) facilitate public health planning and service delivery, and (iii) support research consistent with applicable privacy protections. Establishes the Neurodegenerative Disease Research Support And Grant Fund to make grants to public or private not-for-profit entities for the purpose of conducting neurodegenerative disease research. Sets forth provisions concerning equity and rural access; coordination with federal programs, academic centers, and private partners; reporting; limitations; and rulemaking. Amends the State Finance Act to make a conforming change. Effective immediately.
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Bill Overview
No Economic Impacts Identified for this Bill
Sponsors & Cosponsors
Sponsor
Kam Buckner
Democratic • House
Cosponsors
Amy Briel
Democratic • House
Ann M. Williams
Democratic • House
Barbara Hernandez
Democratic • House
Kimberly Du Buclet
Democratic • House
Michael Crawford
Democratic • House
Nabeela Syed
Democratic • House
Theresa Mah
Democratic • House
Yolonda Morris
Democratic • House
Roll Call Votes
No roll call votes available for this bill.
Actions Timeline
Added Co-Sponsor Rep. Kimberly Du Buclet
4/6/2026HouseAdded Co-Sponsor Rep. Ann M. Williams
4/6/2026HouseAdded Co-Sponsor Rep. Amy Briel
4/6/2026HouseAdded Co-Sponsor Rep. Theresa Mah
4/6/2026HouseHouse Committee Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee
3/27/2026HouseRule 19(a) / Re-referred to Rules Committee
3/27/2026HouseAdded Co-Sponsor Rep. Barbara Hernandez
3/25/2026HouseHouse Committee Amendment No. 1 Rules Refers to Appropriations-Health and Human Services Committee
3/20/2026HouseAdded Co-Sponsor Rep. Yolonda Morris
3/20/2026HouseAdded Co-Sponsor Rep. Nabeela Syed
3/19/2026HouseHouse Committee Amendment No. 1 Referred to Rules Committee
3/19/2026HouseHouse Committee Amendment No. 1 Filed with Clerk by Rep. Kam Buckner
3/19/2026HouseAdded Co-Sponsor Rep. Michael Crawford
3/12/2026HouseAssigned to Appropriations-Health and Human Services Committee
3/4/2026HouseReferred to Rules Committee
2/13/2026HouseFirst Reading
2/13/2026HouseFiled with the Clerk by Rep. Kam Buckner
2/6/2026House
Bill Text
House Amendment 1
Introduced
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