IllinoisHB5465104th General Assembly (2025–2026)House

DPH-NEURO DISEASE PROGRESS ACT

Sponsored By: Kam Buckner

In Committee

Summary

Creates the Neurodegenerative Disease Patient Protection and Progress Act. Requires the Department of Public Health to convene a Neurodegenerative Disease Advisory Council within the Department. Sets forth provisions concerning the membership of the Advisory Council, terms of the members, meetings of the Advisory Council, and administrative support, and duties of the Advisory Council Provides that the Director of Public Health shall designate or hire a full-time Neurodegenerative Disease Coordinator within the Department to implement and administer the Act. Requires the Coordinator, acting through and under the supervision of the Director, and with input from the Advisory Council, to develop and publish a State plan to address neurodegenerative diseases. Sets forth required components of the Plan. Establishes a voluntary statewide clinical and population registry to collect de-identified information and, with the patient's informed consent, limited identifying information, to (i) improve understanding of burden imposed by neurodegenerative diseases, natural history, and outcomes, (ii) facilitate public health planning and service delivery, and (iii) support research consistent with applicable privacy protections. Establishes the Neurodegenerative Disease Research Support And Grant Fund to make grants to public or private not-for-profit entities for the purpose of conducting neurodegenerative disease research. Sets forth provisions concerning equity and rural access; coordination with federal programs, academic centers, and private partners; reporting; limitations; and rulemaking. Amends the State Finance Act to make a conforming change. Effective immediately.

appropriations-health and human services

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Bill Overview

No Economic Impacts Identified for this Bill

Sponsors & Cosponsors

Sponsor

  • Kam Buckner

    Affiliation unavailable

Cosponsors

  • Amy Briel

    Affiliation unavailable

  • Ann M. Williams

    Affiliation unavailable

  • Barbara Hernandez

    Affiliation unavailable

  • Kimberly Du Buclet

    Affiliation unavailable

  • Michael Crawford

    Affiliation unavailable

  • Nabeela Syed

    Affiliation unavailable

  • Theresa Mah

    Affiliation unavailable

  • Yolonda Morris

    Affiliation unavailable

Roll Call Votes

No roll call votes available for this bill.

Actions Timeline

  1. Added Co-Sponsor Rep. Kimberly Du Buclet

    4/6/2026House
  2. Added Co-Sponsor Rep. Ann M. Williams

    4/6/2026House
  3. Added Co-Sponsor Rep. Amy Briel

    4/6/2026House
  4. Added Co-Sponsor Rep. Theresa Mah

    4/6/2026House
  5. House Committee Amendment No. 1 Rule 19(c) / Re-referred to Rules Committee

    3/27/2026House
  6. Rule 19(a) / Re-referred to Rules Committee

    3/27/2026House
  7. Added Co-Sponsor Rep. Barbara Hernandez

    3/25/2026House
  8. House Committee Amendment No. 1 Rules Refers to Appropriations-Health and Human Services Committee

    3/20/2026House
  9. Added Co-Sponsor Rep. Yolonda Morris

    3/20/2026House
  10. Added Co-Sponsor Rep. Nabeela Syed

    3/19/2026House
  11. House Committee Amendment No. 1 Referred to Rules Committee

    3/19/2026House
  12. House Committee Amendment No. 1 Filed with Clerk by Rep. Kam Buckner

    3/19/2026House
  13. Added Co-Sponsor Rep. Michael Crawford

    3/12/2026House
  14. Assigned to Appropriations-Health and Human Services Committee

    3/4/2026House
  15. Referred to Rules Committee

    2/13/2026House
  16. First Reading

    2/13/2026House
  17. Filed with the Clerk by Rep. Kam Buckner

    2/6/2026House

Bill Text

  • House Amendment 1

  • Introduced

Related Bills

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