Development and maintenance of Sickle Cell Disease Voluntary Patient Registry

The South Carolina Department of Public Health shall develop and maintain the Sickle Cell Disease Voluntary Patient Registry for residents of the State who have been diagnosed with sickle cell disease. The purpose of the registry is to: (1) enable individuals diagnosed with sickle cell disease to register so that physicians and other healthcare practitioners providing care to the patient may confirm whether the individual has been diagnosed with sickle cell disease; and (2) collect and study data on the incidence and nature of sickle cell disease in the State to improve patient care and access to services.