(a) There is established within the Department of Health, the Territorial Chronic Kidney Disease, Stroke and Diabetes Registry. The Registry serves as the territorial surveillance system and repository of data regarding patients who have been diagnosed with chronic kidney disease, patients who are receiving dialysis, patients diagnosed with a stroke and patients diagnosed with diabetes in the Territory.
(b) The data concerning each case of diabetes is to be collected and used to conduct epidemiological surveys of diabetes cases in this Territory. The data collected must include:(1) an individual’s date of diagnosis;(2) age at time of diagnosis;(3) the type of diabetes that was diagnosed;(4) whether the individual has a known history of any type of diabetes in the individual’s family;(5) the individual’s height and weight, and(6) the individual’s sex, race, ethnicity, and residential address.
(1) an individual’s date of diagnosis;
(2) age at time of diagnosis;
(3) the type of diabetes that was diagnosed;
(4) whether the individual has a known history of any type of diabetes in the individual’s family;
(5) the individual’s height and weight, and
(6) the individual’s sex, race, ethnicity, and residential address.
(c) The data concerning each person with chronic kidney disease is to be collected and used to conduct epidemiological surveys of chronic kidney disease cases in this Territory. The data collected must include:(1) the patient’s height, weight, medical history, diet, and lifestyle;(2) the patient’s sex, race, ethnicity, and residential address;(3) kidney disease stage (1 -early, 2-mild, 3-moderate, 4-severe, 5-end stage), and information about related comorbidities such as heart disease, hypertension, and diabetes;(4) the total number of patients on dialysis, per each island, and whether the patient is receiving hemodialysis or peritoneal dialysis;(5) laboratory values for diagnostic tests, and medications;(6) insurance coverage details of chronic kidney disease patients, including whether the patient is uninsured, or utilizing private insurance, Medicaid, or Medicare;(7) kidney transplant patients being treated;(8) kidney transplant candidates; and(9) the location of healthcare facilities and healthcare providers that offer dialysis services.
(1) the patient’s height, weight, medical history, diet, and lifestyle;
(2) the patient’s sex, race, ethnicity, and residential address;
(3) kidney disease stage (1 -early, 2-mild, 3-moderate, 4-severe, 5-end stage), and information about related comorbidities such as heart disease, hypertension, and diabetes;
(4) the total number of patients on dialysis, per each island, and whether the patient is receiving hemodialysis or peritoneal dialysis;
(5) laboratory values for diagnostic tests, and medications;
(6) insurance coverage details of chronic kidney disease patients, including whether the patient is uninsured, or utilizing private insurance, Medicaid, or Medicare;
(7) kidney transplant patients being treated;
(8) kidney transplant candidates; and
(9) the location of healthcare facilities and healthcare providers that offer dialysis services.
(d) The data concerning each diagnosis of a stroke must be collected and used to conduct epidemiological surveys of stroke cases in the Virgin Islands. The data collected must include:(1) each individual’s date of diagnosis;(2) age at the time of diagnosis;(3) the type of stroke that was diagnosed;(4) the individual’s family history regarding risk factors for stroke;(5) the individual’s height and weight;(6) the individual’s sex, race, ethnicity, and residential addresses; and(7) the individual’s health insurance/medical coverage or lack thereof.
(1) each individual’s date of diagnosis;
(2) age at the time of diagnosis;
(3) the type of stroke that was diagnosed;
(4) the individual’s family history regarding risk factors for stroke;
(5) the individual’s height and weight;
(6) the individual’s sex, race, ethnicity, and residential addresses; and
(7) the individual’s health insurance/medical coverage or lack thereof.
(e) The Registry shall train and certify personnel designated by the reporting entities as persons responsible for reporting information to the Registry.
(f) The Commissioner of Health shall promulgate administrative guidelines as may be amended from time to time to ensure that the Registry performs its mandate.