§11261 — Title 42 The Public Health and Welfare | U.S. Code

§11261 Research Program

Title 42 › Chapter 118— ALZHEIMER’S DISEASE AND RELATED DEMENTIAS RESEARCH › Subchapter IV— RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH ALZHEIMER’S DISEASE AND RELATED DEMENTIAS AND THEIR FAMILIES › Part 2— Responsibilities of Agency for Healthcare Research and Quality › § 11261

Last updated Apr 5, 2026|Official source

Summary

The Director of the Agency for Healthcare Research and Quality must do or fund research about the services people with Alzheimer’s disease and related dementias need and how those services affect their families. The research must study how services are organized, delivered, and paid for, including how special care units in institutions are designed, staffed, and run, and how home care, day care, and respite care can be improved as alternatives to institutional care. It must look at the costs people and families face, especially for services these patients need that other long‑term care patients usually do not, and at the costs and effectiveness of different interventions. Studies about doctors’ roles and about legal and ethical issues, including issues tied to special care units, must be done with input from the Director of the National Institute on Aging and the Commissioner of the Administration on Aging.

Title 42, §11261

The Public Health and Welfare — Source: USLM XML via OLRC

(a)The Director of the Agency for Healthcare Research and Quality shall conduct, or make grants for the conduct of, research relevant to appropriate services for individuals with Alzheimer’s disease and related dementias and for their families.

(b)The Director of the Agency for Healthcare Research and Quality shall ensure that research conducted under subsection (a) shall include research—

(1)concerning improving the organization, delivery, and financing of services for individuals with Alzheimer’s disease and related dementias and for their families, including research on—

(A)the design, staffing, and operation of special care units for the individuals in institutional settings, as well as individuals in institutional settings,11 So in original. The words “as well as individuals in institutional settings,” probably should not appear. as well as individuals in home care, day care, and respite care; and

(B)the exploration and enhancement of services such as home care, day care, and respite care, that provide alternatives to institutional care;

(2)concerning the costs incurred by individuals with Alzheimer’s disease and related dementias and by their families in obtaining services, particularly services that are essential to the individuals and that are not generally required by other patients under long-term care programs;

(3)concerning the costs, cost-effectiveness, and effectiveness of various interventions to provide services for individuals with Alzheimer’s disease and related dementias and for their families;

(4)conducted in consultation with the Director of the National Institute on Aging and the Commissioner of the Administration on Aging, concerning the role of physicians in caring for persons with Alzheimer’s disease and related dementias and for their families, including the role of a physician in connecting such persons with appropriate health care and supportive services, including those supported through State and area agencies on aging designated under section 3025(a)(1) and (2)(A) of this title; and

(5)conducted in consultation with the Director of the National Institute on Aging and the Commissioner of the Administration on Aging, concerning legal and ethical issues, including issues associated with special care units, facing individuals with Alzheimer’s disease and related dementias and facing their families.

Notes & Related Subsidiaries

Editorial Notes

Prior Provisions

A prior section 11261, Pub. L. 99–660, title IX, § 934, formerly § 947, Nov. 14, 1986, 100 Stat. 3811; renumbered § 934, Pub. L. 100–607, title I, § 142(c)(2)(B), Nov. 4, 1988, 102 Stat. 3057; Pub. L. 102–54, § 13(q)(14)(B), June 13, 1991, 105 Stat. 282, related to research relevant to appropriate services for individuals with Alzheimer’s disease and related dementias, prior to repeal by Pub. L. 102–507, § 7(b)(1)(B).

Amendments

1999—Subsecs. (a), (b). Pub. L. 106–129 substituted “Director of the Agency for Healthcare Research and Quality” for “Administrator of the Agency for Health Care Policy and Research”.