PRIA, Government Policy, Made Personal

Summary

The Secretary of Health and Human Services, through the CDC director, can give grants to states or groups they pick to build or run a state system or registry for tracking traumatic brain injury (TBI). The system must find how many people have TBI and related disabilities, make reporting consistent, help people with TBI get services, and connect them with colleges for research. The registry must collect who was injured, how it happened, where the data came from and key dates, and clinical details like injury severity, outcomes, treatments, and services used. No later than 18 months after April 28, 2008, the Secretary, through the CDC and NIH directors and after consulting the Defense and Veterans Affairs Secretaries, must send Congress a report with findings on how the CDC can improve collecting and sharing compatible studies about TBI in people who used to be in the military, and with recommendations for joint work on better TBI diagnosis and treatment. The Secretary may also collect and study concussion data to find how common concussions are.

Title 42, §280b–1d

The Public Health and Welfare, Source: USLM XML via OLRC

(a)The Secretary, acting through the Director of the Centers for Disease Control and Prevention, may make grants to States or their designees to develop or operate the State’s traumatic brain injury surveillance system or registry to determine the incidence and prevalence of traumatic brain injury and related disability, to ensure the uniformity of reporting under such system or registry, to link individuals with traumatic brain injury to services and supports, and to link such individuals with academic institutions to conduct applied research that will support the development of such surveillance systems and registries as may be necessary. A surveillance system or registry under this section shall provide for the collection of data concerning—

(1)demographic information about each traumatic brain injury;

(2)information about the circumstances surrounding the injury event associated with each traumatic brain injury;

(3)administrative information about the source of the collected information, dates of hospitalization and treatment, and the date of injury; and

(4)information characterizing the clinical aspects of the traumatic brain injury, including the severity of the injury, outcomes of the injury, the types of treatments received, and the types of services utilized.

(b)Not later than 18 months after April 28, 2008, the Secretary, acting through the Director of the Centers for Disease Control and Prevention and the Director of the National Institutes of Health and in consultation with the Secretary of Defense and the Secretary of Veterans Affairs, shall submit to the relevant committees of Congress a report that contains the findings derived from an evaluation concerning activities and procedures that can be implemented by the Centers for Disease Control and Prevention to improve the collection and dissemination of compatible epidemiological studies on the incidence and prevalence of traumatic brain injury in individuals who were formerly in the military. The report shall include recommendations on the manner in which such agencies can further collaborate on the development and improvement of traumatic brain injury diagnostic tools and treatments.

(c)The Secretary, acting through the Director of the Centers for Disease Control and Prevention, may implement concussion data collection and analysis to determine the prevalence and incidence of concussion.

Notes & Related Subsidiaries

Editorial Notes

Prior Provisions

A prior section 393C of act July 1, 1944, was renumbered section 393A and is classified to section 280b–1b of this title.

Amendments

2018—Subsec. (c). Pub. L. 115–377 added subsec. (c). 2008—Pub. L. 110–206, § 3(b)(1), inserted “surveillance and” after “National program for traumatic brain injury” in section catchline. Subsec. (a). Pub. L. 110–206, § 3(b)(2), in introductory provisions, substituted “may make grants to States or their designees to develop or operate the State’s traumatic brain injury surveillance system or registry to determine the incidence and prevalence of traumatic brain injury and related disability, to ensure the uniformity of reporting under such system or registry, to link individuals with traumatic brain injury to services and supports, and to link such individuals with academic institutions to conduct applied research that will support the development of such surveillance systems and registries as may be necessary. A surveillance system or registry under this section shall provide for the collection of data concerning—” for “may make grants to States or their designees to operate the State’s traumatic brain injury registry, and to academic institutions to conduct applied research that will support the development of such registries, to collect data concerning—”. Subsec. (b). Pub. L. 110–206, § 3(c), added subsec. (b).

§280b–1d National Program for Traumatic Brain Injury Surveillance and Registries